What am I thankful for?! My bed!
Sent from my BlackBerry Smartphone provided by Alltel
5.31.2010
Tomorrow...
5.30.2010
Perfect 'Summer' Day
On the cancer front I am feeling well, but bummed about the constant hair thinning...looks like I need to look for a wig soon. Maybe on Tuesday.
Thankful for?!?! Fun in the SUN and waterparks!!!
Sent from my BlackBerry Smartphone provided by Alltel
5.28.2010
Free!
I am now in KC with Dan and the boys! GO DAWGS!!!
Thankful for?! Fresh air and sunshine!
Sent from my BlackBerry Smartphone provided by Alltel
5.27.2010
End of Day 3
I spent some time with mom, (mostly) dad, grandma Leff, Brandy, Kody, Skye, Laken, and Dan today.
Kody wrote me a book, so I read that this evening. Now I am waiting for my meds so I can go to sleep! If all goes well, I hope to go to KC for the weekend to see Skye play baseball. Keep your fingers crossed!
On a sad note, I got a message yesterday letting me know that this nice new patient that I had met and talked to my cancer center had passed away from pancreatic cancer. Her husband had informed me a few days prior that she was going home to have hospice care in her home, as her organ had begun to shut down, so I knew It was coming, but it sucks all the same.
Thankful for?! More time.
Sent from my BlackBerry Smartphone provided by Alltel
5.26.2010
End of day 2
Laken is a trooper! His teeth were feeling okay tonight, but his lip was pretty sore. Dan had to run down and get him some motrin.
It is hard to hang with the boys in a hospital room, I could tell they wanted to get home, but I did get good hugs and kisses and they wrote little notes to me on the dry/erase board in my room.
With regards to my health, or lack there of, they don't know the cause of my fevers yet. My temp is back down to normal again. I continue to get IV antibiotics. My stomach is still upset. I haven't kept down more than a canned pear today. Mmmm! =) But, I am happy to not have the chills and shakes like I did yesterday. That was no good!
Thankful for?! A nice chat with Terri! And a lot of text messages from people checking in on me.
Sent from my BlackBerry Smartphone provided by Alltel
Hospital
Cancer Sucks! When do I wake up and find that this is all just a bad dream?!
Thankful?! That Laken was able to sleep through the night and grandpa Harnly is looking after him today. Thank you, Jim!
Sent from my BlackBerry Smartphone provided by Alltel
Hospital
While here Laken ran into a pole with his face and chipped a bottom and top permanent front teeth, and pushed the other permanent front tooth back. They splinted that tooth, in an attempt to save it, but he will likely lose it. Poor thing!
Thankful for?! Emergency medical and Dental care!
Sent from my BlackBerry Smartphone provided by Alltel
5.25.2010
Success
I have been sick to my stomach since about 9pm last night, but that is my only side effect, so far that I can tell. But, it is still early. Usually they don't hit till Wed or Thur.
What am I thankful for?! Nausea meds and time last night to spend watering my garden and flowers.
I miss Kim! =( Rest In Peace, Friend.
Sent from my BlackBerry Smartphone provided by Alltel
5.22.2010
36 years old!
I also have something great to look forward to! In a week my BFF is moving in with me for a while! It will be so great to have her around!!!
I am so very blessed! In the midst of so much pain and uncertainty, I can still say and be happy that I have so many, many things in my life to be thankful for!
I hope to enjoy the weekend to the fullest, as chemo is just around the corner on Monday, and I need to be prepared for the 'TKO' that comes with it....*sigh*
What am I thankful for?! I am thankful for flowers, pez, M&Ms, rock candy, cards, rubbermaid, Faith, massages, leather pants with pink paint, $, GCs, active shoes with toes, CDs, bubble bath, cameras, more and more and more flowers!!! And, most of all, your TIME and friendship! Hope and Love! -T
Sent from my BlackBerry Smartphone provided by Alltel
5.19.2010
Lipstick and Earrings
I feel more healthy today than I have in 9 months! Just in time to celebrate my 36th birthday tomorrow!!!
4 more years and I have promised myself a trip to NYC! I CAN do this!
I didn't sleep much last night, so I spent most of the night watching my boys sleep. It was a heavenly view!
Hope and Love to all!
What am I thankful for?! Sunshine and blood donors!
Sent from my BlackBerry Smartphone provided by Alltel
5.18.2010
Sunshine
Sent from my BlackBerry Smartphone provided by Alltel
5.17.2010
More Quality Time than He Expected
I will receive daily shots for the next week. One to boost RBCs and one to boost WBCs. I will also get lab every other day to keep an eye on what is happening. I will take antibiotics and will track my temperatures. Chemo will hopefully be next week.
Today we left for Omaha at 9am and we are just heading back to Lincoln now, 9:38pm. When I get there I will have a trip to Walgreens and then finally home to crash! Dad will still have another 40min drive after I hit my bed!
What am I thankful for?! HELP.
Sent from my BlackBerry Smartphone provided by Alltel
5.16.2010
Tomorrow
I have been getting light headed a lot, but I have not passed out since that one time in the middle of the night. I also took my temperature a couple of times this evening and it was 100.8* and 100.4*. They said to call if my temp went up, so I am kinda glad I am going to see my doc in the morning. I am already on antibiotics, so I am not sure why my temperature is up.
What am I thankful for?! Time spent with my parents this weekend. They are spending a lot of time with me and have been so helpful around the house, keeping my spirits up and taking me to Omaha. Brandy also helped by dropping off Gatoraide in every color!
Sent from my BlackBerry Smartphone provided by Alltel
5.13.2010
End of grade school
Thankful for?! So happy to have spent tonight watching Skye sing! He is my STAR!
Blood Counts
The bad news is that my platelets have plummeted since Monday, so they said if I start to have any bleeding, like a bloody nose, that I should go directly to the ER. If they continue to be this low when I go in on Monday, I will have a platelet transfusion.
Thankful for?!?! Naps.
Sent from my BlackBerry Smartphone provided by Alltel
Reseaching Drugs
Hopefully it will be available to people such as myself in a year to 18 months (I hope, crossing fingers!). It was just in stage 2 of clinical trials and was doing so well on my type of breast CA that they stopped the trial and gave it to all the women. They are now trying to rush it through the FDA, but there is still a lot that needs to be done.
Right now they are allowing everyone in the clinical trial to be on and stay on the drug. They are also allowing women to take it on a compassionate basis. In order to get on the drug that way, you half to have failed all types of standard chemotherapy, and have progressive disease. Since, there are types I haven't tried yet, I can't get on the new drug, until it is available to everyone. (12-18 month, hopefully)
What I think is so good about this drug, is that it uses both chemo and biological therapy. Biological therapy allows the combination drug to seek out just the cancer cells and then the chemo component kills them. This is much less toxic on the system, therefore causing fewer side effects! AMEN!
Anyway, that is my simple explaination of what is going on in my head regarding my cancer treatment. My goal is to use these old school standards of treatment to get me through until this new drug combination comes out! The new drug should allow me a much better QOL (quality of life) (if it works for me), than the drugs I am on now.
What am I thankful for?! Dan came over tonight to help us get the video games hooked up. Skye and I have tried for (sadly) months and just couldn't get It accomplished, so Dan so kindly came and got them going. Skye and I were able to plug everything in right, but when It didn't work, we weren't able to discern which component was the problem. Dan was quick at It, and the kids are very happy now! And I am too, maybe they will play a game or too and allow me a little nap time after chemo day. And I can't wait to kick their bootys in bowling! And get started back on the Wii Fit! Fun stuff!
Hope and Love, T
Sent from my BlackBerry Smartphone provided by Alltel
5.11.2010
Holding up Half the Sky
The hummingbird replied, "I heard that the sky might fall today, and so I am ready to help hold it up, should it fall."
The elephant laughed cruelly. "Do you really think," he said, "that those tiny feet could help hold up the sky?"
The hummingbird kept his feet int he air, intent on his purpose, as he replied, "Not alone. But each must do what he can. And this is what I can do."
Holding Up Half The Sky- A Chinese Folktale
Sent from my BlackBerry Smartphone provided by Alltel
5.10.2010
Two beautiful flowers for two amazing little boys!
Sent from my BlackBerry Smartphone provided by Alltel
Chemo Update, set back
I will get my blood drawn in Lincoln this Thur to see if my blood counts have gone up any on their own, and if they have, GREAT! If not I will do shots on Fri and Sat to help boost them up and then go in on Monday again to see if they are up to a satisfactory level. If they are, I will have week 2's chemo that day, and then a break the following week before starting my next round.
They also said I might lose my hair because I have been in so much treatment over the last 5 years and they are giving me a high dose of Carboplatin. They gave me a script for a wig today incase I want to get a wig ahead of time...to "be prepared".. Cab anyone really be prepared for the instant hairloss that chemo causes?!
So, the saga continues…
What am I thankful for?! Thankful for my dad who took the kids to school for me this morning and drove me to Omaha to meet with my oncologist, and for my mom who tipped him off to the idea that I might need help with that today! I have FANTASTIC parents! And, thankful for my sis who called to check on me tonight and talked until her heart monitor started going off in toy-r-us! Haha! That place makes my heart race too! Hers must have been racing so much that her battery was starting to die! Sweet dreams my crazy family!
Sent from my BlackBerry Smartphone provided by Alltel
5.08.2010
Chemo Update
Friday I woke up unable to walk to the bathroom without having to lay down on the floor. I was so weak. It took everything in me to shower....while sitting on the floor of the shower, put some clothes in a bag and brush my teeth by 4pm.
At 4pm Dan and the boys came and put me in the Tahoe, and we headed to Des Moines IA for baseball. When we got here Dan headed to his room, the boys headed to the pool and I hit my room to lay down.
The highlights of the day were: receiving a letter from Skye for mother's day (which made me bawl because he is too grown up for his age sometimes), flowers from the boys in bottles they had decorated, and 9:30pm when the boys came back to the room to snuggle!
At 12:42am my chemo fog seemed to lift, and I am hoping that means a good day of watching baseball tomorrow! (Well, I guess today, since Skye has to be up in 4 hours!)
Luckily I have great support from the other baseball parents, so if things don't go as well as I am hoping, I can always count on them!
What am I thankful for?! A weekend full of baseball with Dan and the boys! Life can be good! Thanks to Heidi S for helping me through the bad times today, because I was having a hard time remembering that, and that is a bad thing to forget!
Sent from my BlackBerry Smartphone provided by Alltel
5.03.2010
marathon shoes.jpg
Sent from my BlackBerry Smartphone provided by Alltel
new skates.jpg
Sent from my BlackBerry Smartphone provided by Alltel
heidis marathon shirt.jpg
Sent from my BlackBerry Smartphone provided by Alltel
IMG01212.jpg
Sent from my BlackBerry Smartphone provided by Alltel