Well, I finished radiation from the metastatic disease in my left clavicular lymphnodes and was feeling good. Unfortunately this last Tuesday I found new lumps on the other side of my neck....same set of nodes, just on the opposite side.
CRAP!!!!!!!! (sorry)
I have CT scans of my chest, abdomen, and pelvis tomorrow, and then I consult with my oncologist on 8/10. That is a lot more WAITING!
Thankful for?!
The last 4 1/2 years that my treatment has been working well (for the most part).
8.03.2009
7.13.2009
5.28.2009
YEE-HAW!
Heading out to the SUGARLAND concert!!!! Thank you to my BFF's Lori and Amy for the ticket! What an AWESOME b'day present!!!
I am thinking they are going to want me to go on tour with them, so I am packing a bag! =)
What am I thankful for?!?! Some time in the sun today!
I am thinking they are going to want me to go on tour with them, so I am packing a bag! =)
What am I thankful for?!?! Some time in the sun today!
5.25.2009
Where do I start first?
A lot has happened in the last month and a half. The fist thing I can think of is the play that Tracy and I attended in Omaha. It was a group of three actors who acted out the feelings that women have after breast cancer treatment....waiting for normal to return! It was a great play and hit a lot of topics that face women in this situation. The actors were out of Canada. Tracy and I were trying to figure out how to get them to Lincoln next year! They also have a play that addresses metastatic cancer. I would be interested in seeing that too, I am sure a lot of the feelings are the same, but I assure you having metastatic cancer carries it's own special set of feelings.
Speaking of metastatic cancer, I finished my radiation to my rib and my pain is now gone. I don't thing the cancer in that area is all gone, but at least the pain is relieved. I am back to sitting at work! WooHoo! I love being lazy!
I did go ahead and run the Lincoln 1/2 Marathon, with encouragement from some, but not all. And to those of you that didn't want me to do it....poo on you. It may have saved my life, at least for now! As I was driving to Omaha after the Marathon to see Skye play baseball, I was feeling the sore muscles in my shoulders and chest from the run and accidentally found lumps in my neck, right above my left collarbone. The 2 lumps that I found were hard and not painful. This was worrisome to me! So, when I got to the game, I pulled aside my doctor friend and had him feel them. He told me to go have them checked out. So, the next morning I went and had them looked at by my oncologist. He sent me strainght down for scans. The scans showed abnormality only in that area. The rest of the scans were unchanged from before.
I went to the surgeon that same week and he took out the two biggest lymphnodes. They were positive for breast cancer. He said there were several smaller nodes that had also showed up on scans, but to remove them all was not a good idea, as it would cause a host of other problems.
When I went back in for my regular treatment, the doc added Arimidex to my treatment (which is a pill I take daily), and set me up to meet with a radiation oncologist, at my request.
I met with the radiation oncologist this past Thursday, and he spoke with me for 1 1/2 hours. He showed me what the CT scan showed, and we discussed treatment. He said that there was no need for me to do the radiaiton because the cancer was not causing me any pain or other symptoms, but I disagreed. I feel that being able to see and feel my cancer causes emotional symptoms and I want the area radiated! He said he would do it if that is what I wanted.
Yep, that is what I want. KILL THE CANCER!!!!! I go for my first treament tomorrow!
I will keep everone updated, as I have a lot more to BLOG about, but this is a bummer topic that I don't want to miss watching Chelsea Lately to discuss!
What am I thnakful for?! My 35th Birthday! The American Cancer Society is the official sponsor of MY birthday!!!!!!
Speaking of metastatic cancer, I finished my radiation to my rib and my pain is now gone. I don't thing the cancer in that area is all gone, but at least the pain is relieved. I am back to sitting at work! WooHoo! I love being lazy!
I did go ahead and run the Lincoln 1/2 Marathon, with encouragement from some, but not all. And to those of you that didn't want me to do it....poo on you. It may have saved my life, at least for now! As I was driving to Omaha after the Marathon to see Skye play baseball, I was feeling the sore muscles in my shoulders and chest from the run and accidentally found lumps in my neck, right above my left collarbone. The 2 lumps that I found were hard and not painful. This was worrisome to me! So, when I got to the game, I pulled aside my doctor friend and had him feel them. He told me to go have them checked out. So, the next morning I went and had them looked at by my oncologist. He sent me strainght down for scans. The scans showed abnormality only in that area. The rest of the scans were unchanged from before.
I went to the surgeon that same week and he took out the two biggest lymphnodes. They were positive for breast cancer. He said there were several smaller nodes that had also showed up on scans, but to remove them all was not a good idea, as it would cause a host of other problems.
When I went back in for my regular treatment, the doc added Arimidex to my treatment (which is a pill I take daily), and set me up to meet with a radiation oncologist, at my request.
I met with the radiation oncologist this past Thursday, and he spoke with me for 1 1/2 hours. He showed me what the CT scan showed, and we discussed treatment. He said that there was no need for me to do the radiaiton because the cancer was not causing me any pain or other symptoms, but I disagreed. I feel that being able to see and feel my cancer causes emotional symptoms and I want the area radiated! He said he would do it if that is what I wanted.
Yep, that is what I want. KILL THE CANCER!!!!! I go for my first treament tomorrow!
I will keep everone updated, as I have a lot more to BLOG about, but this is a bummer topic that I don't want to miss watching Chelsea Lately to discuss!
What am I thnakful for?! My 35th Birthday! The American Cancer Society is the official sponsor of MY birthday!!!!!!
4.06.2009
The Tracys
Today was treatment day, and I was actually kind of excited because I got to spend it with my friend Tracy! We are now on basically the same treatment. So, I think we are going to make it a date...every three weeks for a year. Then she will go on her way, and I will have to find a new buddy to carry on with! That shouldn't be too hard. There was a newly diagnosed girl there with the same type of breast cancer as Tracy and I. She looked younger than us, and both Tracy and I felt badly for her. What a scary time in her life. Hope we made it a little less scary with our laughter and carrying on!
Well, I know I said a while back that I was having a lot of rib pain which lead me to have some xrays. The xrays read, "complete destruction of the right posterior 7th rib, unchanged from 2006". Well, how would it be changed, would it be complete-er destruction of the rib? All I know is that the pain continues and has been there constantly for the last 2-3 months, despite trying tx with a new physical therapist/chiropractor. So, I had a new desk brought into my office so I can do all my computer work from a standing position. This has been helping. Most of the pain comes from sitting or lying down. Anyway, I think the lack of sleep is wearing on me...I don't cope with things very well when I am tired, and there are things that go on in everyday life that test your nerves and mine are frayed.
So.....I start radiation tomorrow. The will radiate my rib. The cancer starts in the back and has grown around the side of my body, towards the front...hence the pain.
They will do 10 treatments with radiation, and then they will assess my pain level and scan me again! I hope this works, because I ran the State Farm 5K 2 weekends ago, and was hoping to get into the upcoming 10K. This lack of training due to lack of motivation stemming from my weight gain, pain, and lack of sleep is not going to be all that helpful in getting me across that finish line but.....I can still walk....crawl! Never say never, right?! My last radiation treatment will fall on the day one of the greatest girls ever, Lori, runs the BOSTON MARATHON!!! Yeah for Lori!!! SHE ROCKS the kasbah!
However, on a very sad note, I have a funeral to attend this Wednesday. The benefit I went to in Seward that I was all excited about because I think the town really stepped up and helped out, well...Scott passed away on Saturday evening, leaving behind a beautiful young wife, an adorable little boy, and lots of family and friends...WHY!???? ........my thoughts and prayers have been going out to them for quite some time, and they continue on now. I am sending them all the love I can during this difficult time of trying to cope, care for a confused child, and make funeral arrangements. Please keep them in your thoughts too. You guys are the best!
On a brighter note, I get to jump out of a perfectly good airplane, for free, in exchange for helping the Lincoln Jump Club promote a fundraiser weekend that they are having in July (more details to come). I am SOOO excited! One more thing to check off the bucket list!!! If things are going well, I am even going to packet a chute! I am so lucky to have this to look forward to!
What I am thankful for?!?! I am thankful that all the crap we as adults have to deal with, has not negatively impacted my children (too badly) as far as I can tell. They are both amazing boys. And, I am anxious to see Skye speak at the Relay team captain meeting tomorrow night!
Well, I know I said a while back that I was having a lot of rib pain which lead me to have some xrays. The xrays read, "complete destruction of the right posterior 7th rib, unchanged from 2006". Well, how would it be changed, would it be complete-er destruction of the rib? All I know is that the pain continues and has been there constantly for the last 2-3 months, despite trying tx with a new physical therapist/chiropractor. So, I had a new desk brought into my office so I can do all my computer work from a standing position. This has been helping. Most of the pain comes from sitting or lying down. Anyway, I think the lack of sleep is wearing on me...I don't cope with things very well when I am tired, and there are things that go on in everyday life that test your nerves and mine are frayed.
So.....I start radiation tomorrow. The will radiate my rib. The cancer starts in the back and has grown around the side of my body, towards the front...hence the pain.
They will do 10 treatments with radiation, and then they will assess my pain level and scan me again! I hope this works, because I ran the State Farm 5K 2 weekends ago, and was hoping to get into the upcoming 10K. This lack of training due to lack of motivation stemming from my weight gain, pain, and lack of sleep is not going to be all that helpful in getting me across that finish line but.....I can still walk....crawl! Never say never, right?! My last radiation treatment will fall on the day one of the greatest girls ever, Lori, runs the BOSTON MARATHON!!! Yeah for Lori!!! SHE ROCKS the kasbah!
However, on a very sad note, I have a funeral to attend this Wednesday. The benefit I went to in Seward that I was all excited about because I think the town really stepped up and helped out, well...Scott passed away on Saturday evening, leaving behind a beautiful young wife, an adorable little boy, and lots of family and friends...WHY!???? ........my thoughts and prayers have been going out to them for quite some time, and they continue on now. I am sending them all the love I can during this difficult time of trying to cope, care for a confused child, and make funeral arrangements. Please keep them in your thoughts too. You guys are the best!
On a brighter note, I get to jump out of a perfectly good airplane, for free, in exchange for helping the Lincoln Jump Club promote a fundraiser weekend that they are having in July (more details to come). I am SOOO excited! One more thing to check off the bucket list!!! If things are going well, I am even going to packet a chute! I am so lucky to have this to look forward to!
What I am thankful for?!?! I am thankful that all the crap we as adults have to deal with, has not negatively impacted my children (too badly) as far as I can tell. They are both amazing boys. And, I am anxious to see Skye speak at the Relay team captain meeting tomorrow night!
3.29.2009
My best days...
This weekend was not only difficult, but wonderful. On Friday night I had the honor of speaking at two Relay For Life events, one at Creighton University and one a UNO. As always, I met people who are fighting the fight. I talked with people, laughed with people, and cried with people. We came together for a common goal, and that goal being Celebrating, Remembering, and Fighting Back! I celebrated with those who fought and won. I cried for those I lost, and I felt empowered by having the opportunity to Fight Back against cancer by passing on a strong message of early detection and being proactive with ones own health. We are our own best advocates!
On Saturday morning I was able to run a road race with my two best guys, Skye Pie and Lakers! I am so proud of them! One mile is a long way to run when you have short little legs! I ran a 5K and was happy to finish without having to stop and walk! I haven't run in months, so I was happy with that!
Today, I went to a benefit in my hometown. It is tragicly sad to see a beautiful young family affected by cancer, and I was overcome with emotion as I walked in, and had to take a moment. The benefit looked to be quite a success, and I am proud to say I am from Seward, as the community really comes together when one of their own is in need of help! I feel blessed to be a part of that.
Honestly, there is nothing better than paying it forward!
What am I thankful for!?! Being asked to help.
On Saturday morning I was able to run a road race with my two best guys, Skye Pie and Lakers! I am so proud of them! One mile is a long way to run when you have short little legs! I ran a 5K and was happy to finish without having to stop and walk! I haven't run in months, so I was happy with that!
Today, I went to a benefit in my hometown. It is tragicly sad to see a beautiful young family affected by cancer, and I was overcome with emotion as I walked in, and had to take a moment. The benefit looked to be quite a success, and I am proud to say I am from Seward, as the community really comes together when one of their own is in need of help! I feel blessed to be a part of that.
Honestly, there is nothing better than paying it forward!
What am I thankful for!?! Being asked to help.
Thank you for 4 years of support!
Dear Friends and Family:
Looking back on 4 years of SURVIVORSHIP...of LIFE. My 4 year anniversary is a celebration of life, of potential, of hopes, perseverance, and of friendship! I hope that you read this BLOG and know that I THANK YOU for all that you have done for me over the last 4 years!
When I first heard that I had cancer, I was sad, but optimistic. Then, a week later, when I heard the extent of my cancer, I was terrified. I was scared to leave behind 2 children that had not had enough time to get to know me, and I was scared that I was going to let down my family and friends by leaving them too soon. I was not ready go…. Things were left undone…
I searched the Internet for treatments, diets, cleanses, and Hope. The statistics said I had only a 20% chance of living 5 years. So, I turned to God and I prayed for a miracle. I did a lot of soul searching, I started journals for my children, and I spent more time in front of the camera than behind it! I wanted to capture memories, thoughts, moments, wisdom and laughter for my children. I wanted them to know that finding peace and happiness, no matter what your circumstances, is the key to life. I wanted to teach them to laugh and show them how to smile!
Over the last 4 years, I feel like I have demonstrated this too them with the help of all of you! You all make me happy and you make me smile in your own special ways. The last 4 years have been no walk in the park. There have been very hard and very dark times for me along the way, but you all have gotten me through with a smile on my face….(most of the time)….and for that I am eternally grateful!
So now here we are, just one year from my 5 year mark…and do you know what I think?…I think I am going to blow it out of the water!!! 10 years….here I come!
Thank you for:
laughing with me*crying with me*holding my hand*saving my funny texts*sitting under a tree*saving second base*running the Komen*marker pimping*dancing like a rockstar*being patient with me*being a DAMA-MAMA or PAPA*letting me share my story*daring me*coloring my hair pink*surviving with me*being persistent*making me laugh*listening even when what I have to say is hard to hear*rekindling that old friendship*having faith in me*pushing me*videotaping my story(take 32)*letting me give you a piggyback ride*telling me that I am not too old to pierce my nose*wanting more for yourself and letting me help you get it*sharing my wigs and hats with me*e-mailing me*calling me even though you know I never answer*inviting me to dinner*fundraising with me*running next to me*running ahead of me in silent encouragement*inviting me into your family*letting me win*letting me walk*sharing your drink*buying me sushi*writing your “why I relay” stories*understanding me*pretending to when you don’t*forgiving me*never forgetting*sharing music*watching movies*swimming in the ocean*skinny-dipping in March*going to Disney*renting a limo*singing over me*letting me pick*giving me faith*finding Hope*stocking my freezer*threatening to put a bean up your nose to make me laugh*dancing in the rain*holding me*hugs and kisses*sharing your strength*knowing when to be silent*knowing when to scream*knowing when an inappropriate joke is appropriate*not letting me jump*taking my picture*sharing your story*rubbing my feet*sharing your candy bar*asking how I am*knowing when fine doesn’t mean fine* calling me adorable when clearly I am losing it*finding me $10,000*saving my hair*sitting with me at baseball games*making me feel like a part of the group*not making me sing Karaoke*coming to my party*being in my life*riding the mechanical bull*going on girls trips*helping me understand*helping me forget*letting me forgive*painting my nails*telling me when I have spinach in my teeth*hottubbing*being my FB friend*wearing pasties on the beach*sharing chapstick*loving me despite me*buying and sporting things with pink ribbons on them*using pink ribbon checks*leaving peanut butter twix on my desk when I am out*making me a journal*saving pictures of you and I*driving 8 hours for this party*visiting me*sitting in the driveway*scheduling your vacations with me*telling me when I am nuts, not stopping me*loving my children like your own*wearing pink awareness or LIVESTRONG bands*BEING A PART OF ME FOREVER!*
What am I thankful for?! YOU!
Looking back on 4 years of SURVIVORSHIP...of LIFE. My 4 year anniversary is a celebration of life, of potential, of hopes, perseverance, and of friendship! I hope that you read this BLOG and know that I THANK YOU for all that you have done for me over the last 4 years!
When I first heard that I had cancer, I was sad, but optimistic. Then, a week later, when I heard the extent of my cancer, I was terrified. I was scared to leave behind 2 children that had not had enough time to get to know me, and I was scared that I was going to let down my family and friends by leaving them too soon. I was not ready go…. Things were left undone…
I searched the Internet for treatments, diets, cleanses, and Hope. The statistics said I had only a 20% chance of living 5 years. So, I turned to God and I prayed for a miracle. I did a lot of soul searching, I started journals for my children, and I spent more time in front of the camera than behind it! I wanted to capture memories, thoughts, moments, wisdom and laughter for my children. I wanted them to know that finding peace and happiness, no matter what your circumstances, is the key to life. I wanted to teach them to laugh and show them how to smile!
Over the last 4 years, I feel like I have demonstrated this too them with the help of all of you! You all make me happy and you make me smile in your own special ways. The last 4 years have been no walk in the park. There have been very hard and very dark times for me along the way, but you all have gotten me through with a smile on my face….(most of the time)….and for that I am eternally grateful!
So now here we are, just one year from my 5 year mark…and do you know what I think?…I think I am going to blow it out of the water!!! 10 years….here I come!
Thank you for:
laughing with me*crying with me*holding my hand*saving my funny texts*sitting under a tree*saving second base*running the Komen*marker pimping*dancing like a rockstar*being patient with me*being a DAMA-MAMA or PAPA*letting me share my story*daring me*coloring my hair pink*surviving with me*being persistent*making me laugh*listening even when what I have to say is hard to hear*rekindling that old friendship*having faith in me*pushing me*videotaping my story(take 32)*letting me give you a piggyback ride*telling me that I am not too old to pierce my nose*wanting more for yourself and letting me help you get it*sharing my wigs and hats with me*e-mailing me*calling me even though you know I never answer*inviting me to dinner*fundraising with me*running next to me*running ahead of me in silent encouragement*inviting me into your family*letting me win*letting me walk*sharing your drink*buying me sushi*writing your “why I relay” stories*understanding me*pretending to when you don’t*forgiving me*never forgetting*sharing music*watching movies*swimming in the ocean*skinny-dipping in March*going to Disney*renting a limo*singing over me*letting me pick*giving me faith*finding Hope*stocking my freezer*threatening to put a bean up your nose to make me laugh*dancing in the rain*holding me*hugs and kisses*sharing your strength*knowing when to be silent*knowing when to scream*knowing when an inappropriate joke is appropriate*not letting me jump*taking my picture*sharing your story*rubbing my feet*sharing your candy bar*asking how I am*knowing when fine doesn’t mean fine* calling me adorable when clearly I am losing it*finding me $10,000*saving my hair*sitting with me at baseball games*making me feel like a part of the group*not making me sing Karaoke*coming to my party*being in my life*riding the mechanical bull*going on girls trips*helping me understand*helping me forget*letting me forgive*painting my nails*telling me when I have spinach in my teeth*hottubbing*being my FB friend*wearing pasties on the beach*sharing chapstick*loving me despite me*buying and sporting things with pink ribbons on them*using pink ribbon checks*leaving peanut butter twix on my desk when I am out*making me a journal*saving pictures of you and I*driving 8 hours for this party*visiting me*sitting in the driveway*scheduling your vacations with me*telling me when I am nuts, not stopping me*loving my children like your own*wearing pink awareness or LIVESTRONG bands*BEING A PART OF ME FOREVER!*
What am I thankful for?! YOU!
3.25.2009
I am a mess!
Well, I don't know what the deal is...is there more cancer out there? Do I just notice it more? Do people just come to me with questions more since I have it? I don't know, but right now it seems like the whole world is going to be consumed by cancer. (Not me of course, because the all knowing FB quiz said I was going to die in my 70's during a tragic stripper pole accident!)
This month alone....
I had a friend lose her stepmom to cancer,
I had a friend lose a friend to cancer,
and I watched in sorrow as my community lost a beautiful and courageous 4 year old little boy to cancer.
And, this month alone.....
I watch from afar as a fellow HOH restarts a difficult battle with the disease,
I arrange my schedule to synchronize my chemo treatments with the chemo treatments of a dear childhood friend,
I will attend a benefit for a local cancer fighter from my hometown,
I celebrated the life of a friend I lost to cancer, on her birthday, without her,
I talk almost daily to a mom who is distraught with the grief of having a son-in-law with cancer and the effects it has on the whole young family,
and daily I gulp down sleeping pills and painkillers to try and continue life as usual with rib pain due to my own damn cancer.
And then, after all of that, people have the nerve to say to me, "why do you do relay?", "don't you have enough on your plate?".....
I can't think of one reason why I shouldn't do relay. I don't know how I could sleep at night, knowing what I know, and feeling how I feel and not do relay. I don't know if I could ever forgive myself for not trying to fight back against this disease! I have lost too much....I will lose too much in the future....and every second I doubt my strength to go on, I vow to put one more dollar into the pot.
One more dollar to help others go on.
One more dollar towards research to cure a disease that takes kids, and moms, and dads....sisters....brothers...beloved friends....
One more dollar to help a young lady learn how to paint on eyebrows and feel pretty so that she maintains the self-esteem needed to keep fighting for her life.
How could I sleep?......
What am I thankful for?!
The will, and the ability, to FIGHT BACK!
This month alone....
I had a friend lose her stepmom to cancer,
I had a friend lose a friend to cancer,
and I watched in sorrow as my community lost a beautiful and courageous 4 year old little boy to cancer.
And, this month alone.....
I watch from afar as a fellow HOH restarts a difficult battle with the disease,
I arrange my schedule to synchronize my chemo treatments with the chemo treatments of a dear childhood friend,
I will attend a benefit for a local cancer fighter from my hometown,
I celebrated the life of a friend I lost to cancer, on her birthday, without her,
I talk almost daily to a mom who is distraught with the grief of having a son-in-law with cancer and the effects it has on the whole young family,
and daily I gulp down sleeping pills and painkillers to try and continue life as usual with rib pain due to my own damn cancer.
And then, after all of that, people have the nerve to say to me, "why do you do relay?", "don't you have enough on your plate?".....
I can't think of one reason why I shouldn't do relay. I don't know how I could sleep at night, knowing what I know, and feeling how I feel and not do relay. I don't know if I could ever forgive myself for not trying to fight back against this disease! I have lost too much....I will lose too much in the future....and every second I doubt my strength to go on, I vow to put one more dollar into the pot.
One more dollar to help others go on.
One more dollar towards research to cure a disease that takes kids, and moms, and dads....sisters....brothers...beloved friends....
One more dollar to help a young lady learn how to paint on eyebrows and feel pretty so that she maintains the self-esteem needed to keep fighting for her life.
How could I sleep?......
What am I thankful for?!
The will, and the ability, to FIGHT BACK!
2.26.2009
Results!
No changes! It's all good!!!
What am I thankful for?!
The warm-ish weather we have had the last couple of days!
What am I thankful for?!
The warm-ish weather we have had the last couple of days!
2.24.2009
Tests
Tomorrow I am having an MRI of my spine and rib x-rays due to increased pain over the last month or two. Here is to hoping it is just muscle tension.
The doctor said they would get the test results ASAP, so I should be able to BLOG my results tomorrow night.
Happy FAT TUESDAY to you all!
What am I thankful for?!
My two amazing children! They are the light of my life!
The doctor said they would get the test results ASAP, so I should be able to BLOG my results tomorrow night.
Happy FAT TUESDAY to you all!
What am I thankful for?!
My two amazing children! They are the light of my life!
2.07.2009
February already?!?!
I have been so crazy lately with the holidays, my computer being down for 3 weeks and my surgeries! I ended up with one more surgery at the beginning of this year to repair my hysterectomy. My stitches dissolved before my body was able to heal. Bummer. I am two weeks or so out from that, and so far so good!
Relay meetings are in full swing now, so I have our website up and going. I am excited about that. Perseverance Rocks! I am on the executive committee for our relay, I am a team captain again, and I am on a divisional work group for the Heroes of Hope program! I get to go to Dallas this month for the HOH workgroup. I work with such amazing people through relay. It is amazing what the ACS is able to do. They have a large and dedicated volunteer base! It is amazing the amount of work they convince us to do for free! LOL We all have our reasons! And most of us have MANY reasons!
What am I thankful for?! Optimism (no matter what).
Relay meetings are in full swing now, so I have our website up and going. I am excited about that. Perseverance Rocks! I am on the executive committee for our relay, I am a team captain again, and I am on a divisional work group for the Heroes of Hope program! I get to go to Dallas this month for the HOH workgroup. I work with such amazing people through relay. It is amazing what the ACS is able to do. They have a large and dedicated volunteer base! It is amazing the amount of work they convince us to do for free! LOL We all have our reasons! And most of us have MANY reasons!
What am I thankful for?! Optimism (no matter what).
12.17.2008
BAD NEWS!
At 10pm I ran out of Rocky Road ice cream!
Good news, cookies and cream ice cream doesn't suck. I put a hurtin' on that at 3am when I let the dog out to potty! I have to go back to work before I need to order a larger office chair! Can someone go into my office and measure the width of my chair? I need to know how close I am getting! Just comment back, and let me know!
What am I thankful for?!
Cymbalta! If you are crazy too, you will know what I mean!
Good news, cookies and cream ice cream doesn't suck. I put a hurtin' on that at 3am when I let the dog out to potty! I have to go back to work before I need to order a larger office chair! Can someone go into my office and measure the width of my chair? I need to know how close I am getting! Just comment back, and let me know!
What am I thankful for?!
Cymbalta! If you are crazy too, you will know what I mean!
12.15.2008
Recovering
So, I decided that I don't make a very good patient, because all I do is pout around about all the things I should be doing. I am trying to watch the movies that Dan brought me to keep me occupied, but I keep pausing the movie to do things, like straighten things in the living room, and since I am not supposed to lift much, I made 20 trips to the washer to put clothes in piece by piece! I can't watch a movie knowing that a pile of dirt clothes is just sitting there!
I also realized that I am addicted to ice cream! That was the first thing I ate in the hospital after my fasting for surgery, and now I can't seem to stop eating it! Rocky Road is my favorite at the moment, and the worst so far is Birthday Cake Ice Cream. It is way too sweet!
A friend of mine also brought over homemade tacos for the whole family on my first night home, and a get well kit with all the necessities, like flashy earrings, holiday bangles, colored lip shimmer, a fancy red clutch, crazy knee-high socks, a monkey game....what more could a girl want? I am glammed out for my trip from the bed to the bathroom!
The kids have been keeping close tabs on me, and they love the fact that they are getting ice cream before bed every night! Skye loves to help, so he took the bandaides off my stomach last night so I could shower. I have 5 small incisions on my belly where the went in with the robot and camera to look around. The figured that since they were going to have me under anesthesia anyway, they might as well take a look around an see what is going on in there with their own eyes! My gyn oncologist is Dr. Morris, and he is GREAT! He said that they did not see any cancer anywhere with the camera. He said that pathology would look at everything they took out and get back to me in about a week. That was good news!
I am ultra bummed for my friend Tracy. She just shaved her head. Her hair is falling out from the chemo. For goodness sake it is 7 degrees out!!! She will get good use out of the Packers stocking cap! Lucky for her she is blessed with a nice head and cute little ears! If you are a girl, or even you guys, give a little thanks for your hair. You don't think about how much you use it to define you until it falls out. And in most situations it falls out in the middle of a life trauma....cancer. Cancer not only beats you up on the inside and threatens your life, but at the same time it puts a major strain on your self-esteem with the hair loss, acne, weight gain from steroids (or eating too much ice cream), and some people even lose their finger and toe nails. Not only do you have to live, but you have to know that you are worth fighting for even though you feel like crap! Tracy P, I know you are worth fighting for, and I know that you know it too! You are lucky to have a great support network, including a hubby who loves your bald little head, because it is a part of you now, and...your hair might affect your looks, but it doesn't affect who you are, and you are BEAUTIFUL!
Well, I better get going, I gotta unpause that movie. At this rate it will take me 3 weeks to watch it.
What am I thankful for?!
For my hair. For the drugs that are making Tracy better. For Rocky Road ice cream.
I also realized that I am addicted to ice cream! That was the first thing I ate in the hospital after my fasting for surgery, and now I can't seem to stop eating it! Rocky Road is my favorite at the moment, and the worst so far is Birthday Cake Ice Cream. It is way too sweet!
A friend of mine also brought over homemade tacos for the whole family on my first night home, and a get well kit with all the necessities, like flashy earrings, holiday bangles, colored lip shimmer, a fancy red clutch, crazy knee-high socks, a monkey game....what more could a girl want? I am glammed out for my trip from the bed to the bathroom!
The kids have been keeping close tabs on me, and they love the fact that they are getting ice cream before bed every night! Skye loves to help, so he took the bandaides off my stomach last night so I could shower. I have 5 small incisions on my belly where the went in with the robot and camera to look around. The figured that since they were going to have me under anesthesia anyway, they might as well take a look around an see what is going on in there with their own eyes! My gyn oncologist is Dr. Morris, and he is GREAT! He said that they did not see any cancer anywhere with the camera. He said that pathology would look at everything they took out and get back to me in about a week. That was good news!
I am ultra bummed for my friend Tracy. She just shaved her head. Her hair is falling out from the chemo. For goodness sake it is 7 degrees out!!! She will get good use out of the Packers stocking cap! Lucky for her she is blessed with a nice head and cute little ears! If you are a girl, or even you guys, give a little thanks for your hair. You don't think about how much you use it to define you until it falls out. And in most situations it falls out in the middle of a life trauma....cancer. Cancer not only beats you up on the inside and threatens your life, but at the same time it puts a major strain on your self-esteem with the hair loss, acne, weight gain from steroids (or eating too much ice cream), and some people even lose their finger and toe nails. Not only do you have to live, but you have to know that you are worth fighting for even though you feel like crap! Tracy P, I know you are worth fighting for, and I know that you know it too! You are lucky to have a great support network, including a hubby who loves your bald little head, because it is a part of you now, and...your hair might affect your looks, but it doesn't affect who you are, and you are BEAUTIFUL!
Well, I better get going, I gotta unpause that movie. At this rate it will take me 3 weeks to watch it.
What am I thankful for?!
For my hair. For the drugs that are making Tracy better. For Rocky Road ice cream.
12.08.2008
New look!
Well, I spent all my time updating my BLOG to the new template that I don't really have time to type much! I tried forever to move my site counter up higher, but can't seem to figure it out, so that is now all the way down at the bottom, is anyone cares. It is a little off, but with that many hits, who can keep track anyway?! =)
I am all recovered-ish from my colorectal surgery, and I start a clear liquid diet tomorrow along with a two day colon cleanse beginning on Wednesday, all in preparation for Friday's hysterectomy. I don't anticipate any problems with this surgery either. I can't tell you how excited I am for the fasting and prepping, but in preparation of the preparation I ate M&M's, pop tarts, Jimmy John's, and a taco salad as big as my head and right now I am just finishing up a Coors Light. One couldn't hurt, right?! Surely not after the Dancing Queen show I put on Friday night during a night out with the girls to the local gay bar! They always have the best dancing at those gay bars! Well, except when I go, I ugly it up tall, blond, white girl style! Oh dear! Real friends would not have let me dance with my scarf swirling overhead! (You know who you are!)
Hope everyone is doing well! And recovering from all that turkey!
What am I thankful for?!
The ability to take one day at a time. I am also thankful for Tracy's drive down memory lane! It is good to do that ever now and then.
I am all recovered-ish from my colorectal surgery, and I start a clear liquid diet tomorrow along with a two day colon cleanse beginning on Wednesday, all in preparation for Friday's hysterectomy. I don't anticipate any problems with this surgery either. I can't tell you how excited I am for the fasting and prepping, but in preparation of the preparation I ate M&M's, pop tarts, Jimmy John's, and a taco salad as big as my head and right now I am just finishing up a Coors Light. One couldn't hurt, right?! Surely not after the Dancing Queen show I put on Friday night during a night out with the girls to the local gay bar! They always have the best dancing at those gay bars! Well, except when I go, I ugly it up tall, blond, white girl style! Oh dear! Real friends would not have let me dance with my scarf swirling overhead! (You know who you are!)
Hope everyone is doing well! And recovering from all that turkey!
What am I thankful for?!
The ability to take one day at a time. I am also thankful for Tracy's drive down memory lane! It is good to do that ever now and then.
11.25.2008
Sad news!
Well, since she has started a BLOG, I think it is safe to pass on to you that one of my best friends, going way back, has been diagnosed with breast cancer. This is sad news for me, and even more sad news for her. I hate the idea of anyone going through this, especially a dear friend!
I found out on my way home from our Dominican trip. I cried all the way through the airport and lit up everyone's phones until I got ahold of someone who could give me more information.
I hope that she knows that I would and WILL do anything in the world for her!
If you would like to check out Tracy's blog, here is the address- http://mynewreality-tracy.blogspot.com/
Keep her in your thoughts and prayers! I know I have wonderful people looking after me, and I hope that you will include her. In high school we were never referred to alone, we were always The Tracy's or The Blondie's! Now we are The little Miss Cancer Pants'! Some things I wish we didn't have to share.
What am I thankful for?!
I am thankful that her cancer did not spread to her lymphnodes and beyond! She is going to kick cancers butt!
I found out on my way home from our Dominican trip. I cried all the way through the airport and lit up everyone's phones until I got ahold of someone who could give me more information.
I hope that she knows that I would and WILL do anything in the world for her!
If you would like to check out Tracy's blog, here is the address- http://mynewreality-tracy.blogspot.com/
Keep her in your thoughts and prayers! I know I have wonderful people looking after me, and I hope that you will include her. In high school we were never referred to alone, we were always The Tracy's or The Blondie's! Now we are The little Miss Cancer Pants'! Some things I wish we didn't have to share.
What am I thankful for?!
I am thankful that her cancer did not spread to her lymphnodes and beyond! She is going to kick cancers butt!
11.22.2008
Here come the Holidays!
Seems like I spend a good share of time thinking about medical things during the holidays.
The kiddos and I are going to spend Thanksgiving with my Grandparents and mom in Branson MO. The last few years Dan and I have been going seperate ways over thanksgiving in order to see our own families, and the kids have been going with him. This year they are going to go with me. Their great Grandma and Grandpa Leff are so excited that they are coming to visit, and my mom is already on her way to Branson. Dan is going to spend the holiday with his family and that totally incredibly cute little niece, Zoey! She is the highlight of the holidays.
After our trip to Branson I will be out of commission for a little bit. The first week in December I am having some non-cancerous growths removed from my colon and the second week in December I am having a hysterectomy. Yippie!
Then it will be Christmas and on to the New Year....
What am I thankful for?!
HOPE.
The kiddos and I are going to spend Thanksgiving with my Grandparents and mom in Branson MO. The last few years Dan and I have been going seperate ways over thanksgiving in order to see our own families, and the kids have been going with him. This year they are going to go with me. Their great Grandma and Grandpa Leff are so excited that they are coming to visit, and my mom is already on her way to Branson. Dan is going to spend the holiday with his family and that totally incredibly cute little niece, Zoey! She is the highlight of the holidays.
After our trip to Branson I will be out of commission for a little bit. The first week in December I am having some non-cancerous growths removed from my colon and the second week in December I am having a hysterectomy. Yippie!
Then it will be Christmas and on to the New Year....
What am I thankful for?!
HOPE.
11.11.2008
Scan Results
Everything looks stable according to my scans. The only definate cancer is in my right seventh rib, which is completely replaced with tumor, but still not really bothering me much, and then some tiny, questional spots at T3, T8, and T11 of my spine.
So... I consider this another win for me!
What am I thankful for?!?!
The doctors that are taking such good care of me now. And everyone at Midwest Cancer Imaging Center, for making scan day fun, not stressful! You all rock! See you in 3 weeks for my MUGA!
So... I consider this another win for me!
What am I thankful for?!?!
The doctors that are taking such good care of me now. And everyone at Midwest Cancer Imaging Center, for making scan day fun, not stressful! You all rock! See you in 3 weeks for my MUGA!
10.20.2008
Days go by....
It has been awhile since I have last typed a BLOG. My friend in hospice passed away, and time went on. My kids started 4th and 1st grade, and time went on. Michelle and I went to Dallas and received an award on behalf of team Perseverance, and time went on.
My latest news is that I am headed to the Dominican Republic with Dan and some friends on vacation. The sun and sand should be nice!!!
I had treatment today, and because of some worsening anemia and constant fatigue, I will be having an upper GI and a colonoscopy this Thursday. The week we get back from vacation I will be going back in for CT scans! Everything always happens at once, and then......time goes on.
What am I thankful for?!
The opportunity to go to the beach. I am very thankful for that! I know that it is a luxury. Each day I have should be considered a luxury.
My latest news is that I am headed to the Dominican Republic with Dan and some friends on vacation. The sun and sand should be nice!!!
I had treatment today, and because of some worsening anemia and constant fatigue, I will be having an upper GI and a colonoscopy this Thursday. The week we get back from vacation I will be going back in for CT scans! Everything always happens at once, and then......time goes on.
What am I thankful for?!
The opportunity to go to the beach. I am very thankful for that! I know that it is a luxury. Each day I have should be considered a luxury.
8.21.2008
One of my ACS video's and my e-mail address
Well, I knew that it would happen sometime, but a video of me is now on the www! Here is the address if you want to check it out: www.sharinghope.tv/video/2050485
Also, I have gotten a lot of requests for my e-mail address, because several people want to be able to correspond with me without it being posted on my BLOG for everyone in cyberspace to read. So...my address is tmarymoon@gmail.com. Please e-mail me with any comments or questions you may have, and I will try to respond as quickly as possible!
Mean people need not e-mail!
What am I thankful for?!
Friends that I haven't seen forever! And...video editors that make me look better at this stuff than I really am!
Drew- I hope your mom is doing well! I had no idea she was a BC survivor. And, your father-in-law will be in my thoughts!
Also, I have gotten a lot of requests for my e-mail address, because several people want to be able to correspond with me without it being posted on my BLOG for everyone in cyberspace to read. So...my address is tmarymoon@gmail.com. Please e-mail me with any comments or questions you may have, and I will try to respond as quickly as possible!
Mean people need not e-mail!
What am I thankful for?!
Friends that I haven't seen forever! And...video editors that make me look better at this stuff than I really am!
Drew- I hope your mom is doing well! I had no idea she was a BC survivor. And, your father-in-law will be in my thoughts!
8.14.2008
And....
....another shining star goes on hospice....hearts break.
What am I thankful for?!
Sometimes it is hard to be thankful during hard times, but I guess I am thankful for hospice nurses. They must have hearts of gold to be able to care for people during such emotionally and physically difficult times. I am reading a book called "Glimpses of Heaven" by Trudy Harris, RN. She was a hospice nurse and tells stories of peoples last days/minutes here on Earth. It is very spiritual and makes me less fearful of death.
8.03.2008
Relay is over. Now what?
It has been so busy that I haven't had any time to type. Relay was an amazing success! Our $35000 fundraising goal was blown out of the water....the money tallying is not yet complete by the ACS, but it looks like we might have reached $50000!!!!!! That is so unbelievable to me. I don't think I have quite grasped it yet! Much thanks to the Brunings, the Dominators, my DDS'ers, and team Perseverance!!!! Wow, each year Relay has gotten bigger and bigger! It is such an emotional night to end all the FUN-draising chaos!
During the opening ceremonies we had 11 team members receive $1000+ fundraising t-shirts! How amazing is that! Team Perseverance is made up of ROCKSTARS! Then I got to accept a check for $10000 from WalMart! They helped us SAVE OUR HAIR! How great is that! It was crazy! They gave me one of those huge-mongous checks, like publishers clearinghouse! How fun was that! I cried on the poor man's shoulder! I am sure he was wondering what kind of nut I was. How amazing! That money will help so many people right here in Nebraska!
The luminary ceremony was emotional as always, but I was so busy that I didnt have time to get the luminaries from my parents and my kiddos together and was so worried that I wouldn't get them lit before other people started lighting them. It worked out, but I was tired, and I think it was just all so emotional that I was not handling things very well. Also, this year was extra hard because I just lost Kim this year, our friend Jason started chemo, my friend from work is struggling with her treatments, and my friend Katy just lost her sister in May. We thought Katy's sister would be here this year to walk with us, but I guess a higher power had different plans for her. It was a rough night for her family, and my heart ached for them.
I shared speaking duties with my friend Eric this year in our Fight Back ceremony which was held RIGHT after the luminaries. So, in my emotional state I hear the announcement over the loud speakers that the Fight Back Ceremony would be starting in a matter of minutes, and I just couldn't pull it together that fast. Eric has also been through a lot this year, and adding those emotions to the emotions I was already having just sent me over the edge. I cried through the whole thing! CANCER IS JUST NOT FAIR! The rest of the night I just tried to zone out and when the sun rose in the morning we all headed home and went to bed.
The last few days following Relay have been hard. I found myself sitting in the cemetary crying, and not being able to stop. I had spent the last year speaking at Relay events and the last 6 months fundraising. I did it in all the free time that I had. I wanted to make a difference, and I was working hard at it. Cancer hit my friends over and over throughout the year, and I was doing everything I could do to fight back. But when Relay was all said and done, and the money was turned in, I felt an immense sense of saddness.....all that work and my friends that cancer had taken were still gone, and my sick friends were still sick, and I still had to go to chemo on Monday morning. I should have felt such joy in all that we had accomplished! I should have been excited, but I couldn't help just feeling sad that we still do not have a cure. But I have no doubt that we will be one step closer and that many, many cancer patients will benefit from the many services that the ACS provides. I am trying to focus on that......
What am I thankful for?!
Sunny days, candlelight, and Hope for the future.
During the opening ceremonies we had 11 team members receive $1000+ fundraising t-shirts! How amazing is that! Team Perseverance is made up of ROCKSTARS! Then I got to accept a check for $10000 from WalMart! They helped us SAVE OUR HAIR! How great is that! It was crazy! They gave me one of those huge-mongous checks, like publishers clearinghouse! How fun was that! I cried on the poor man's shoulder! I am sure he was wondering what kind of nut I was. How amazing! That money will help so many people right here in Nebraska!
The luminary ceremony was emotional as always, but I was so busy that I didnt have time to get the luminaries from my parents and my kiddos together and was so worried that I wouldn't get them lit before other people started lighting them. It worked out, but I was tired, and I think it was just all so emotional that I was not handling things very well. Also, this year was extra hard because I just lost Kim this year, our friend Jason started chemo, my friend from work is struggling with her treatments, and my friend Katy just lost her sister in May. We thought Katy's sister would be here this year to walk with us, but I guess a higher power had different plans for her. It was a rough night for her family, and my heart ached for them.
I shared speaking duties with my friend Eric this year in our Fight Back ceremony which was held RIGHT after the luminaries. So, in my emotional state I hear the announcement over the loud speakers that the Fight Back Ceremony would be starting in a matter of minutes, and I just couldn't pull it together that fast. Eric has also been through a lot this year, and adding those emotions to the emotions I was already having just sent me over the edge. I cried through the whole thing! CANCER IS JUST NOT FAIR! The rest of the night I just tried to zone out and when the sun rose in the morning we all headed home and went to bed.
The last few days following Relay have been hard. I found myself sitting in the cemetary crying, and not being able to stop. I had spent the last year speaking at Relay events and the last 6 months fundraising. I did it in all the free time that I had. I wanted to make a difference, and I was working hard at it. Cancer hit my friends over and over throughout the year, and I was doing everything I could do to fight back. But when Relay was all said and done, and the money was turned in, I felt an immense sense of saddness.....all that work and my friends that cancer had taken were still gone, and my sick friends were still sick, and I still had to go to chemo on Monday morning. I should have felt such joy in all that we had accomplished! I should have been excited, but I couldn't help just feeling sad that we still do not have a cure. But I have no doubt that we will be one step closer and that many, many cancer patients will benefit from the many services that the ACS provides. I am trying to focus on that......
What am I thankful for?!
Sunny days, candlelight, and Hope for the future.
6.19.2008
I relay....
I relay …
I started to relay because my kids were 2 and 5 years old, and I thought their mommy was dying. I was desperate to do anything that might lead to a cure or at the very least… stall the inevitable.
I continued to relay because I became a part of a community that I understood and loved and who understood and loved me. It didn’t matter if I was sad, mad, scared, excited, nervous, confused or apprehensive. They always understood, and never said, “Don’t think like that”. They understood that when you face cancer, there is nothing you don’t think about.
I relay today because when I was diagnosed I knew no one who had cancer, and since that time I have had many friends diagnosed with cancer and three who have already died.
I relay today because I have more things left to see and do.
I relay today because I am tired of going to the cemetery to talk to the one friend who might REALLY know how I feel.
I relay today because I can’t hear her answers to the questions I am asking. I relay today because her children drop off her mother’s day gifts at the cemetery.
I relay today because I refuse to believe that this is how it is meant to be.
I will relay tomorrow because I don’t give up.
I will relay tomorrow because there has to be a reason why I am still here and my friends are not, and I don’t yet know what that reason is.
I will relay tomorrow because I have friends that aren’t yet cured.
I will relay tomorrow because the memories of those that have gone before me are never to be forgotten and should be honored to the fullest.
I will relay tomorrow because I don’t want my children or your children to die from cancer.
I will relay tomorrow because Relay has given me so much and I want to give back.
I will relay tomorrow because…I love you.
What am I thankful for?!
The Dama-mamas, my friends (some here, and some playing supporting roles in other states), my coworkers, my ACSers, my family, my husband, and MY CHILDREN...oh, and you too, Taz!
I started to relay because my kids were 2 and 5 years old, and I thought their mommy was dying. I was desperate to do anything that might lead to a cure or at the very least… stall the inevitable.
I continued to relay because I became a part of a community that I understood and loved and who understood and loved me. It didn’t matter if I was sad, mad, scared, excited, nervous, confused or apprehensive. They always understood, and never said, “Don’t think like that”. They understood that when you face cancer, there is nothing you don’t think about.
I relay today because when I was diagnosed I knew no one who had cancer, and since that time I have had many friends diagnosed with cancer and three who have already died.
I relay today because I have more things left to see and do.
I relay today because I am tired of going to the cemetery to talk to the one friend who might REALLY know how I feel.
I relay today because I can’t hear her answers to the questions I am asking. I relay today because her children drop off her mother’s day gifts at the cemetery.
I relay today because I refuse to believe that this is how it is meant to be.
I will relay tomorrow because I don’t give up.
I will relay tomorrow because there has to be a reason why I am still here and my friends are not, and I don’t yet know what that reason is.
I will relay tomorrow because I have friends that aren’t yet cured.
I will relay tomorrow because the memories of those that have gone before me are never to be forgotten and should be honored to the fullest.
I will relay tomorrow because I don’t want my children or your children to die from cancer.
I will relay tomorrow because Relay has given me so much and I want to give back.
I will relay tomorrow because…I love you.
What am I thankful for?!
The Dama-mamas, my friends (some here, and some playing supporting roles in other states), my coworkers, my ACSers, my family, my husband, and MY CHILDREN...oh, and you too, Taz!
6.18.2008
6.08.2008
Summer is a busy time
Well, it is a busy time of the year! We have had more baseball games than I can count, and the kids are happy to finally be playing outside again....and so am I! I have been doing some speaking still for Relay, and just had to have my chemo port replaced this last week.
This coming Friday I have scans again and will get my results the following Monday. YES....I am aware that I said I was never going to wait for scan results over a weekend again, but that is the only time they could do them! I have a busy weekend, so I don't think I will have time to worry about them anyway.
What am I thankful for?!
Time with my children!
This coming Friday I have scans again and will get my results the following Monday. YES....I am aware that I said I was never going to wait for scan results over a weekend again, but that is the only time they could do them! I have a busy weekend, so I don't think I will have time to worry about them anyway.
What am I thankful for?!
Time with my children!
5.07.2008
A Letter to my Medical Providers
May 7, 2008
To my Outstanding Medical Providers,
A little over three years ago I began a journey towards living….because, little to my knowledge and little to the knowledge of those around me I was dying. Dying wasn't painful, it wasn't scary, as a matter of fact, it was easy.
What isn't easy? Living isn't easy. It is hard work. It takes will. And, a lot of the time it hurts. It hurt in my bones, it hurt in my heart, and it hurt to the bottom of my soul.
I went through MRIs, CT scans, PET scans, x-rays, 2 port surgeries, 6 rounds of chemotherapy, radiation to my spine, a mastectomy, and even a few highly encouraged counseling sessions.
I saw people come and go at chemotherapy, older people and younger people. I saw people cry when they got good results and cry when they got bad results. I saw people come in for one, two, and ten year follow-ups and be disease free. I saw families bring in food to the doctors and nurses who cared for their love ones up until they slipped away.
I learned that nothing in life is guaranteed and I learned that if you want something bad enough, you damn well better work for it.
I learned that life is too short to waste your time worrying about things that don't matter.
I learned that you need to embrace the good things in your life and try to rid your life of the toxic things that cloud your existance. And, I learned that 100 percent of the time this is easier said than done.
I learned that you can not run away from cancer, but trying sure makes you feel better.
I learned that if you are just crazy enough you can run 13.1 miles on a treadmill at the gym and it is healing on the mind and hard on the knees!
I learned that if you are lucky enough to have great family and friends they will applaud you for your acheivements and some will even rub your feet!
Most of all, I learned that strength and courage has to come from within. It can not be given to us by others, but the will to seek that strength within can be found when looking into the eyes of your children, or your parents, or your spouse, or a friend.
When I was diagnosed with stage IV breast cancer, I felt like I had lost control over the only thing I felt like I was in control of- I felt as though I had lost control of my body. In a world where I often felt so out of control, at least I had control over my body. At the point of diagnosis, I felt that little piece of security melting away.
So, as I was going through my cancer treatments I thought about ways that I could gain that feeling of control back. Logically, or not, I went straight to the idea of running a half-marathon. I thought that if I could propel my body 13.1 miles, then I was in control!
I began training. I started out at one mile a day on a treadmill. Then I moved to 2, 4, 5, 8, and 10 mile runs on the treadmill. One time I even ran 13.1 miles on the treadmill. As it got warmer I moved my training outside and made it all the way up to an 11 mile trail run. I was set to run my marathon!
One and a half weeks before my marathon is when I found out that YOU CAN NOT RUN AWAY FROM CANCER. That is when I found out that what I thought was back spasms was really metastatic cancer in my spine. The pain made it impossible for me to run the marathon I had trained so hard for. And, cancer proved once again that I was not in control.
On the day before that 2006 marathon I went to the runners expo and picket up my race packet. I turned in my chip timer and took home the bib number that I was not going to be wearing. I cried on my way out of the expo and several other times throughout the next week. Then I started radiation to my spine and was once again content with my plan of treatment and set my sights on finishing a different kind of marathon. Radiation. Daily. 5-6 weeks.
After radiation was done and my energy started to return I started running again. My body was fatigued, but I was determined. Then came the compression fracture in my spine with vertebroplasty and a mastectomy. I won’t lie to you. Those were hard, and my spirits were down, and I decided that the 2007 marathon was not going to be in the cards for me either. The day of the 2007 marathon I did not leave the house. It was too painful to see all those people out doing what I so desperately wanted to do! I was crushed and I felt like I was losing.
Days went by, then weeks. Scan after blessed scan showed no progression of my cancer. I began to feel stronger and stronger. In November of 2007 I began training again! First I trained on the treadmill, but soon I opted for all outdoor runs. The runs were going well and I was running up to 8 miles at a time. Then came the knee pain. But I was going to run through it. If it couldn’t kill me, then I was going to run. I was NOT going to let another Lincoln marathon come and go without being a part of it.
As the pain continued I began to think that my training might be hurting me more than it was helping me. So, I went to the doctor to make sure that cancer was not playing a role in my training again. X-rays were taken, and my knee and bones looked strong, with no sign of cancer. I was relieved! I continued to run. Again, I wondered if I was doing the right thing by running through the pain. So, I had an MRI done of the knee. The MRI also showed that my knee was in good condition. So, I started physical therapy and continued with my weekly to daily chiropractic and acupuncture treatments. There was some question as to why I continued to run through the pain, but everyone soon learned that they were not going to convince me otherwise.
I reduced my running distance and frequency substantially, but I never gave up hope. I was going to be in control and I refused to believe differently.
In January 2008 I had what would be my last set of scans before the marathon. I was so nervous. I searched the internet for other marthons in the country that I could go run at a moments notice, because if my cancer was spreading, I was not going to start treatment until I ran 13.1 miles. Somewhere. Anywhere.
The scan results came back after a LONG weekend of waiting. But it was worth the wait! No progression! So, in March 2008 I signed up for the marthon and paid my fee. I ran a few times, here and there, but it took so much time for my knee to feel good again, after a run, that I didn’t run much.
On May 3, 2008 I went down to the runners expo, picked up my chip timer and my bib number and I headed to my doctors office for one last adjustment and a little acupuncture before the big day.
On May 4, 2008 I started, ran, and COMPLETED the 2008 National Guard ½ Marathon in Lincoln Nebraska! It was a monumental moment in my life, and I did it with my husband, children, and parents watching, and my friends by my side! And, at the finishline, I threw my prosthetic breast in the air. Because I had just proved, if to no one other than myself, that you can complete a ½ Marathon with one breast, cement in your spine, and cancer in your rib!
Been there! Done that! Got the t-shirt!
Thanks for all that you do!
Love,
Tracy
“Attitude is everything!”
WHAT AM I THANKFUL FOR?!?! The opportunity to send this letter out to all those people that have taken such good care of me and helped me to my goal! LOVE AND RESPECT! I am also thankful for all the people that cheered us on at the marathon and handed out water!!! A special thanks to the people with ICE!!! (As you may have noticed, some of this BLOG was a repeat from a previous blog for the benefit of my medical providers, but gawd knows it was worth repeating!)
To my Outstanding Medical Providers,
A little over three years ago I began a journey towards living….because, little to my knowledge and little to the knowledge of those around me I was dying. Dying wasn't painful, it wasn't scary, as a matter of fact, it was easy.
What isn't easy? Living isn't easy. It is hard work. It takes will. And, a lot of the time it hurts. It hurt in my bones, it hurt in my heart, and it hurt to the bottom of my soul.
I went through MRIs, CT scans, PET scans, x-rays, 2 port surgeries, 6 rounds of chemotherapy, radiation to my spine, a mastectomy, and even a few highly encouraged counseling sessions.
I saw people come and go at chemotherapy, older people and younger people. I saw people cry when they got good results and cry when they got bad results. I saw people come in for one, two, and ten year follow-ups and be disease free. I saw families bring in food to the doctors and nurses who cared for their love ones up until they slipped away.
I learned that nothing in life is guaranteed and I learned that if you want something bad enough, you damn well better work for it.
I learned that life is too short to waste your time worrying about things that don't matter.
I learned that you need to embrace the good things in your life and try to rid your life of the toxic things that cloud your existance. And, I learned that 100 percent of the time this is easier said than done.
I learned that you can not run away from cancer, but trying sure makes you feel better.
I learned that if you are just crazy enough you can run 13.1 miles on a treadmill at the gym and it is healing on the mind and hard on the knees!
I learned that if you are lucky enough to have great family and friends they will applaud you for your acheivements and some will even rub your feet!
Most of all, I learned that strength and courage has to come from within. It can not be given to us by others, but the will to seek that strength within can be found when looking into the eyes of your children, or your parents, or your spouse, or a friend.
When I was diagnosed with stage IV breast cancer, I felt like I had lost control over the only thing I felt like I was in control of- I felt as though I had lost control of my body. In a world where I often felt so out of control, at least I had control over my body. At the point of diagnosis, I felt that little piece of security melting away.
So, as I was going through my cancer treatments I thought about ways that I could gain that feeling of control back. Logically, or not, I went straight to the idea of running a half-marathon. I thought that if I could propel my body 13.1 miles, then I was in control!
I began training. I started out at one mile a day on a treadmill. Then I moved to 2, 4, 5, 8, and 10 mile runs on the treadmill. One time I even ran 13.1 miles on the treadmill. As it got warmer I moved my training outside and made it all the way up to an 11 mile trail run. I was set to run my marathon!
One and a half weeks before my marathon is when I found out that YOU CAN NOT RUN AWAY FROM CANCER. That is when I found out that what I thought was back spasms was really metastatic cancer in my spine. The pain made it impossible for me to run the marathon I had trained so hard for. And, cancer proved once again that I was not in control.
On the day before that 2006 marathon I went to the runners expo and picket up my race packet. I turned in my chip timer and took home the bib number that I was not going to be wearing. I cried on my way out of the expo and several other times throughout the next week. Then I started radiation to my spine and was once again content with my plan of treatment and set my sights on finishing a different kind of marathon. Radiation. Daily. 5-6 weeks.
After radiation was done and my energy started to return I started running again. My body was fatigued, but I was determined. Then came the compression fracture in my spine with vertebroplasty and a mastectomy. I won’t lie to you. Those were hard, and my spirits were down, and I decided that the 2007 marathon was not going to be in the cards for me either. The day of the 2007 marathon I did not leave the house. It was too painful to see all those people out doing what I so desperately wanted to do! I was crushed and I felt like I was losing.
Days went by, then weeks. Scan after blessed scan showed no progression of my cancer. I began to feel stronger and stronger. In November of 2007 I began training again! First I trained on the treadmill, but soon I opted for all outdoor runs. The runs were going well and I was running up to 8 miles at a time. Then came the knee pain. But I was going to run through it. If it couldn’t kill me, then I was going to run. I was NOT going to let another Lincoln marathon come and go without being a part of it.
As the pain continued I began to think that my training might be hurting me more than it was helping me. So, I went to the doctor to make sure that cancer was not playing a role in my training again. X-rays were taken, and my knee and bones looked strong, with no sign of cancer. I was relieved! I continued to run. Again, I wondered if I was doing the right thing by running through the pain. So, I had an MRI done of the knee. The MRI also showed that my knee was in good condition. So, I started physical therapy and continued with my weekly to daily chiropractic and acupuncture treatments. There was some question as to why I continued to run through the pain, but everyone soon learned that they were not going to convince me otherwise.
I reduced my running distance and frequency substantially, but I never gave up hope. I was going to be in control and I refused to believe differently.
In January 2008 I had what would be my last set of scans before the marathon. I was so nervous. I searched the internet for other marthons in the country that I could go run at a moments notice, because if my cancer was spreading, I was not going to start treatment until I ran 13.1 miles. Somewhere. Anywhere.
The scan results came back after a LONG weekend of waiting. But it was worth the wait! No progression! So, in March 2008 I signed up for the marthon and paid my fee. I ran a few times, here and there, but it took so much time for my knee to feel good again, after a run, that I didn’t run much.
On May 3, 2008 I went down to the runners expo, picked up my chip timer and my bib number and I headed to my doctors office for one last adjustment and a little acupuncture before the big day.
On May 4, 2008 I started, ran, and COMPLETED the 2008 National Guard ½ Marathon in Lincoln Nebraska! It was a monumental moment in my life, and I did it with my husband, children, and parents watching, and my friends by my side! And, at the finishline, I threw my prosthetic breast in the air. Because I had just proved, if to no one other than myself, that you can complete a ½ Marathon with one breast, cement in your spine, and cancer in your rib!
Been there! Done that! Got the t-shirt!
Thanks for all that you do!
Love,
Tracy
“Attitude is everything!”
WHAT AM I THANKFUL FOR?!?! The opportunity to send this letter out to all those people that have taken such good care of me and helped me to my goal! LOVE AND RESPECT! I am also thankful for all the people that cheered us on at the marathon and handed out water!!! A special thanks to the people with ICE!!! (As you may have noticed, some of this BLOG was a repeat from a previous blog for the benefit of my medical providers, but gawd knows it was worth repeating!)
3.16.2008
Relay For Life 2008
I fixed the Link to me Relay For Life page.
The Link to my page is:
The Link to Perseverance is:
The Link to Perseverance Too is:
3.14.2008
Anniversary
THREE YEARS AND STILL ALIVE!!!!!
We did the annual survivorship skinny dip at 12:05am this morning to commemorate the day!!!! Brrrr!
What am I thankful for?! I am thankful that the pond wasn't frozen! =)
3.12.2008
Relay For Life 2008
COMMITMENT
"The biggest and hardest single thing that you will be required to do in the entire battle is to make up your mind to really fight it.
You must, on your own, make the commitment that you will do everything in your power to fight the disease.
No exceptions. No halfway. Nothing for the sake of ease or convenience.
Everything! Nothing short of it.
When you have done this, you have accomplished the most difficult thing you will have to accomplish throughout your entire treatment."
Richard and Anne Bloch, A Tribute to Life, Cancer Survivors Plaza, Dallas TX
It is the 2008 Relay for Life season, and this year, teams "Perseverance" and "Perseverance Too" have commited to CELEBRATE, REMEMBER, and FIGHT BACK!
We are celebrating those who are surviving cancer and celebrating the lives of those that are no long with us.
We are remembering those that we have lost, and all that we loved about them.
We are fighting back in honor of those that we have loved and lost, we are fighting back in honor of us that are still fighting our battles, and we are fighting back so that some day cancer will be just a very bad memory.
Last year team Perseverance raised $21000! We acheived state recognition for our fundraising efforts, and we celebrated how much we were able to do when we put our hearts into what we were doing...well, guess what! Our hearts grew 3 sizes over the holidays!
This year we have branched into two teams because of the number of people we have helping us towards our goal. Team Perseverance will be captained by myself, and Lori and Michelle have graciously accepted the responsibilities of being co-captains. Our other team will be called Perseverance Too (which is not really another team at all)! We are all one in our efforts. P Too will be captained by Skye! He is very proud of his new responsibilities!
This year our goal is to raise $35,000 by team Perseverance and $5,000 by Perseverance Too! And WHEN we accomplish this next goal we have set for ourselves, I (and my co-captains, so they say) will get my head shaved! I have to admit, I have started to have a few panic feelings about the head shaving (I like my hair, and I have really big ears) but when I think about all that I have lost to cancer in the last 3 years, I am reminded that a head shaving is NOTHING compared to the losses that I have felt. I have gone through difficult treatments and permanent body alterating surgeries, I have cried with friends who have been diagnosed with difficult cancers, I have listened to friends who have lost family members to the disease, I have spoken to hundreds of people about my story and about how the American Cancer Society is keeping me alive and I have vowed to do everything I can to help them in their efforts, I have attended the funerals of beloved friends, and I have looked into the teary eyes of my children and I have promised them that I will do everything in my power be here with them as long as I possibly can.
So...if shaving my head, gets some people excited, then I am going to do it! I will tell every newspaper and TV station in the state about our goals, and WE will get this done! I do this for my children, my parents, my husband, and my family and friends. I do this in memory of Christopher, Dr. Larson, Ginni, Mrs. Trindle, and Kim. I do this for the love of my survivor friends that I have met through the RELAY, HEROES OF HOPE, LIFESPRING, METHODIST AND MIDWEST CANCER CENTERS, and LIFE. I do this for my friends who have lost parents, siblings, neices, nephews, aunts, uncles, grandparents and friends. And, I do this for me, I am not done here!
If you want to do this too, then please, go to my website and make a donation:
To make a donation online and to track our progress, visit http://main.acsevents.org/goto/tracy.harnly
"The biggest and hardest single thing that you will be required to do in the entire battle is to make up your mind to really fight it.
You must, on your own, make the commitment that you will do everything in your power to fight the disease.
No exceptions. No halfway. Nothing for the sake of ease or convenience.
Everything! Nothing short of it.
When you have done this, you have accomplished the most difficult thing you will have to accomplish throughout your entire treatment."
Richard and Anne Bloch, A Tribute to Life, Cancer Survivors Plaza, Dallas TX
It is the 2008 Relay for Life season, and this year, teams "Perseverance" and "Perseverance Too" have commited to CELEBRATE, REMEMBER, and FIGHT BACK!
We are celebrating those who are surviving cancer and celebrating the lives of those that are no long with us.
We are remembering those that we have lost, and all that we loved about them.
We are fighting back in honor of those that we have loved and lost, we are fighting back in honor of us that are still fighting our battles, and we are fighting back so that some day cancer will be just a very bad memory.
Last year team Perseverance raised $21000! We acheived state recognition for our fundraising efforts, and we celebrated how much we were able to do when we put our hearts into what we were doing...well, guess what! Our hearts grew 3 sizes over the holidays!
This year we have branched into two teams because of the number of people we have helping us towards our goal. Team Perseverance will be captained by myself, and Lori and Michelle have graciously accepted the responsibilities of being co-captains. Our other team will be called Perseverance Too (which is not really another team at all)! We are all one in our efforts. P Too will be captained by Skye! He is very proud of his new responsibilities!
This year our goal is to raise $35,000 by team Perseverance and $5,000 by Perseverance Too! And WHEN we accomplish this next goal we have set for ourselves, I (and my co-captains, so they say) will get my head shaved! I have to admit, I have started to have a few panic feelings about the head shaving (I like my hair, and I have really big ears) but when I think about all that I have lost to cancer in the last 3 years, I am reminded that a head shaving is NOTHING compared to the losses that I have felt. I have gone through difficult treatments and permanent body alterating surgeries, I have cried with friends who have been diagnosed with difficult cancers, I have listened to friends who have lost family members to the disease, I have spoken to hundreds of people about my story and about how the American Cancer Society is keeping me alive and I have vowed to do everything I can to help them in their efforts, I have attended the funerals of beloved friends, and I have looked into the teary eyes of my children and I have promised them that I will do everything in my power be here with them as long as I possibly can.
So...if shaving my head, gets some people excited, then I am going to do it! I will tell every newspaper and TV station in the state about our goals, and WE will get this done! I do this for my children, my parents, my husband, and my family and friends. I do this in memory of Christopher, Dr. Larson, Ginni, Mrs. Trindle, and Kim. I do this for the love of my survivor friends that I have met through the RELAY, HEROES OF HOPE, LIFESPRING, METHODIST AND MIDWEST CANCER CENTERS, and LIFE. I do this for my friends who have lost parents, siblings, neices, nephews, aunts, uncles, grandparents and friends. And, I do this for me, I am not done here!
If you want to do this too, then please, go to my website and make a donation:
To make a donation online and to track our progress, visit http://main.acsevents.org/goto/tracy.harnly
To send a donation, make all checks payable to: American Cancer Society
5733 S 34th Ste 500 Lincoln, Nebraska 68516
(Indicate Relay team: Tracy Harnly-Team Perseverance)
You can also help by forwarding this information on to others that you think might be with us in our fight! You will be affecting the lives of millions!
HOPE and LOVE to you!
(Indicate Relay team: Tracy Harnly-Team Perseverance)
You can also help by forwarding this information on to others that you think might be with us in our fight! You will be affecting the lives of millions!
HOPE and LOVE to you!
What am I thankful for?! All the friends/family that have joined my team, all the people that are considering helping us out this year, and I am thankful that I have hair....today! =)
3.08.2008
Thanks for looking out for me!
According to the comments on my last blog there are at least a couple people that are looking out for me and wondering what is going on. One of the comments said I have looked sad at work and have been missing a lot of days.
Well, let me tell ya...Cancer sucks, and I have a few friends in the thick of it right now, and that just frustrates me and breaks my heart! One has been fighting for 2 years and is the most amazingly strong and sometimes painfully independent woman. One is newly diagnosed with a young family and stage four disease. He is stubborn and has a kick ass attitude, which will take him a long way. And the third has been doing this for 6 years I believe...he has the power to move mountains and despite several doctors visits and hospital stays lately, he will pull it out in the end. All three are survivors of a disease that no one should have to experience.
So, that might be why I have looked sad lately.
As for missing a lot of work, I had treatment on Monday and my MUGA to check my heart functioning. My MUGA scan was good. And treatment was uneventful. I had lost 10 pounds in 3 weeks, so I was a little worried about that, but I had blood work and exams done, and they don't see any cause for alarm, so I guess we willl just chalk that up to an unanswered prayer finally answered, because God knows I haven't done anything to work that weight off!
As for the rest of the days I have been gone- Wednesday night I got the stomach flu, so I was on my bathroom floor on Thursday and Friday! Good times!
What am I up to now? Well, I am working on my RELAY teams and hoping to get some fundraising started! And, I am (sort of) training for the Lincoln 1/2 marathon.
Never a dull day! I do my Hope thing in Alma NE tomorrow and was in Seward NE speaking at their Relay Kick Off last week! My dad and my Aunt Ruthie went to that, so that was a nice surprise!
What am I thankful for?! I am thankful that I am no longer throwing up! I am thankful for my husband who took over 100% while I was out of commission. I am thankful for all the movies I had DVRed prior to getting sick! Have you seen Under the Tuscan Sun? Great movie!
Well, let me tell ya...Cancer sucks, and I have a few friends in the thick of it right now, and that just frustrates me and breaks my heart! One has been fighting for 2 years and is the most amazingly strong and sometimes painfully independent woman. One is newly diagnosed with a young family and stage four disease. He is stubborn and has a kick ass attitude, which will take him a long way. And the third has been doing this for 6 years I believe...he has the power to move mountains and despite several doctors visits and hospital stays lately, he will pull it out in the end. All three are survivors of a disease that no one should have to experience.
So, that might be why I have looked sad lately.
As for missing a lot of work, I had treatment on Monday and my MUGA to check my heart functioning. My MUGA scan was good. And treatment was uneventful. I had lost 10 pounds in 3 weeks, so I was a little worried about that, but I had blood work and exams done, and they don't see any cause for alarm, so I guess we willl just chalk that up to an unanswered prayer finally answered, because God knows I haven't done anything to work that weight off!
As for the rest of the days I have been gone- Wednesday night I got the stomach flu, so I was on my bathroom floor on Thursday and Friday! Good times!
What am I up to now? Well, I am working on my RELAY teams and hoping to get some fundraising started! And, I am (sort of) training for the Lincoln 1/2 marathon.
Never a dull day! I do my Hope thing in Alma NE tomorrow and was in Seward NE speaking at their Relay Kick Off last week! My dad and my Aunt Ruthie went to that, so that was a nice surprise!
What am I thankful for?! I am thankful that I am no longer throwing up! I am thankful for my husband who took over 100% while I was out of commission. I am thankful for all the movies I had DVRed prior to getting sick! Have you seen Under the Tuscan Sun? Great movie!
1.21.2008
Results
My scans are stable! My cancer is still confined to just my rib! Fantastic news!
Just got home from Plattsmouth...doin' my "hope thing"! Drove the whole way in the wind and snow!
If I ever get my arms around a palm tree I will NEVER let go!!!!!
Headed to Omaha to share my story with a couple hundred more people tomorrow evening! ...but, I do have to work in the meantime, so I better get to bed! I am wiped out! Thanks for all of your support and getting me through yet another set of scans!
What am I thankful for?! I am thankful that my cancer isn't spreading and I am THANKFUL that I get to kiss my kids goodnight!
Hope and Love! -T
Just got home from Plattsmouth...doin' my "hope thing"! Drove the whole way in the wind and snow!
If I ever get my arms around a palm tree I will NEVER let go!!!!!
Headed to Omaha to share my story with a couple hundred more people tomorrow evening! ...but, I do have to work in the meantime, so I better get to bed! I am wiped out! Thanks for all of your support and getting me through yet another set of scans!
What am I thankful for?! I am thankful that my cancer isn't spreading and I am THANKFUL that I get to kiss my kids goodnight!
Hope and Love! -T
1.20.2008
Never having scans at the end of the week again!
So, lastnight consisted of finally melting down (we knew it would happen), I hate waiting for my scan results and I hate that my friend is on the other side. So, I got to spend a little time in the bathroom crying and throwing up after the kids went to bed. Having cancer and little kids is hard. You can't just get mad and scream and yell and cry and throw things when the mood strikes you (and believe me, I WANT to), because I assure you that would scare that crap out of my poor children. And most of the time, this is about them, not about me.
So, here we go with another day of me being short tempered with my husband, weepy in the shower, and happy and smiling and "fine" in public to the grocery clerks, etc....it is exhausting! (And when I say 'fine' in public, I am not referring to those who cut me off in traffic when I am alone in my car, because I am pretty sure you will hear about it and will recognize that I am, in fact, not fine!) And, heck, we all know I am not fine....we are familiar with me!
I just wish it was tomorrow already, so I can get this show on the road. But first, I suppose I better plan for my two speaking engagements this week~ tomorrow evening and Tuesday evening! Life doesn't stop because I have cancer, well at least not yet!
The last two weeks have been all cancer all the time for our family with two cancer related funerals, four cancer related speaking events, my scans, and treatment. Not to mention some of my fellow "Heroes of Hope" that are going through VERY tough and trying times right now! They definately have it rougher than I do, which makes me feel like I really should get over myself! Luckily, that is a tight knit community and the e-mails and prayers are flowing.
So, what on earth am I thankful for today?! I am thankful that my husband is so understanding when I snap at him for trying to help me put music on my MP3 player (I do recognize that he is just trying to help), I am thankful that Colbie Caillat makes such cute, happy little songs that keep me from throw a stapler through the window, and I am thankful that I am still here to worry about stuff like this, because it really beats the alternative! LOVE AND HOPE! -tracy Attitude is everything!....yep, I am working on it! Starting now!
So, here we go with another day of me being short tempered with my husband, weepy in the shower, and happy and smiling and "fine" in public to the grocery clerks, etc....it is exhausting! (And when I say 'fine' in public, I am not referring to those who cut me off in traffic when I am alone in my car, because I am pretty sure you will hear about it and will recognize that I am, in fact, not fine!) And, heck, we all know I am not fine....we are familiar with me!
I just wish it was tomorrow already, so I can get this show on the road. But first, I suppose I better plan for my two speaking engagements this week~ tomorrow evening and Tuesday evening! Life doesn't stop because I have cancer, well at least not yet!
The last two weeks have been all cancer all the time for our family with two cancer related funerals, four cancer related speaking events, my scans, and treatment. Not to mention some of my fellow "Heroes of Hope" that are going through VERY tough and trying times right now! They definately have it rougher than I do, which makes me feel like I really should get over myself! Luckily, that is a tight knit community and the e-mails and prayers are flowing.
So, what on earth am I thankful for today?! I am thankful that my husband is so understanding when I snap at him for trying to help me put music on my MP3 player (I do recognize that he is just trying to help), I am thankful that Colbie Caillat makes such cute, happy little songs that keep me from throw a stapler through the window, and I am thankful that I am still here to worry about stuff like this, because it really beats the alternative! LOVE AND HOPE! -tracy Attitude is everything!....yep, I am working on it! Starting now!
1.19.2008
Counter going up by leaps and bounds!
I see that there have been a lot of hits on my BLOG, so I thought I would let you all know that I will not have my final scan results until I meet with my doctor and have treatment on Monday! Which means I will not be blogging until late monday evening, because I am also telling my story at a Relay For Life kick off meeting in Plattsmouth, NE Monday evening.
What am I thankful for?!?! Today...my jammies and a lack of need to get out of them! I got out of my bed to type this and am headed right back! It is warm in there and there is a TV...what more do I need when it is 5 degrees outside?!
What am I thankful for?!?! Today...my jammies and a lack of need to get out of them! I got out of my bed to type this and am headed right back! It is warm in there and there is a TV...what more do I need when it is 5 degrees outside?!
1.18.2008
There is always a story!
So... Yesterday was your average run of the mill day of nothing to eat and drink after midnight, no big deal, well, only a small deal when your scans are at 7am. So, ya miss a cup of coffee or two, or a diet soda, in my case.
Well, bigger deal when your scans are at 1pm! By that point I was starving...I eat when I am nervous, I think I have mentioned that before, and the caffeine headache had set in! They said I could take my medications as I normally do, so I went so far as to digging out the Midol for the caffeine content! I know, I truly am a caffeine junkie! People at work literally GIVE me money, "no need to borrow, please just take it" if I for get my soda money....sad isn't it.
Okay, so it's not like I don't have reserves, I have a few extra pounds packed on, it is not like I am going to starve to death!
I walked into the office where I was going to have my scans done and my tech was about to inhale tacos and a soda...I was joking around about how tacos were my fav, and he politely tucked them away, and offered to save one for me for after my scans. No, I did not take a taco from a starving tech. I assured him I could wait, and that I had twizzlers waiting for me in the car for when I was done! I got checked in and sat done. In the waiting room they were watching the Food Network! Apparently I was not the only one obsessing over food at the moment. I probably wasn't even that hungry, my stomach was just angry that I took my meds on an empty stomach and then threw in so midol on top of that! Yummy! But, the headache did go away which was nice.
So, when they were ready for me, I went to a room...more of a closet, with a recliner, a sink, and an IV pole, with a bright yellow sign that says "Warning: Radioactive Material". After about 5 minutes in the chair with an IV started and something from a syringe circulating, I realized that that Radioactive Material was ME! I know, right?! I was hoping I got to wear a t-shirt out of there with that warning on it! As if I don't have enough t-shirts. So, before a PET scan they give you the radioactive glucose, I believe that is what it is, but also a huge bag of fluids and some lasix (the stuff that makes you pee a lot). So, conveniently the bathroom is located right next door to me and my recliner in the radioactive closet! So for the next hour, or a little more I received IV fluids and then flushed them out, then more fluids and more flushing. Not really the funnest game, but it kept me occupied. I talked to the techs who lingered at the door every once in a while, and time went by. The tech that does most of my scans, we will call him Bobbie, but his name is Matt, is 25 years old and embarrasses easily...oh this is so fun for me, I love it when people embarrass easily!
I went back to the scanning room, got placed in the machine, and waited. Over the top of my feet, I could see the techs all gathering on the other side of the glass wall. They informed me that they were getting ready to start. The sooner the better, those rooms feel like meat lockers! They slowly moved my body into the machine, and then they all got these concerned and then perplexed looks on their faces! ---OH GREAT! ---After a couple of minutes Bobbie came back into the room and asked if I have had surgery on my right side, and if they had implanted something, and with his hands he is making a motion like it could be the size of a plum?! No, no surgery. I have cancer in the rib on that side...had I suddenly grown a massive tumor there?!? He then asked if when I was in the staging room, maybe I had my MP3 player laying on my chest and maybe that was showing up as heat or something?!?? No.... Then I realized that maybe it could be my breast prosthesis (which IS bigger than a plum, I know you were thinking that), so I told him I was wearing one, and went to take it out, and he had bolted out of the room muttering what sounded like "the girls will no more..."! One of the girls came in, I gave it to her, we started again, and that was that. The gel inset used to weigh down the foam prosthesis was showing up on the scan. Whew! That was a scare. The rest of the scan was quiet. I know they all know what it showed, but no one can tell me. I have to wait for the radiologists.
So, after the PET scan I went back to my closet to drink a little banana flavored CT contrast. Sadly, the same contract that has made me feel gaggy in the past, was now very exciting! Because...you guessed it.... it was now 3:30 or 4 o'clock, and I still had not yet had anything to eat or drink! They should have brought it in a champagne glass for as excited as I was! It was yummy....really! Matt, I mean Bobbie, walked by and I flagged him down and told him that I was hurt, because I thought we had something special, and when I tried to hand him my boob, he had bolted! HAHA! I know, creepy! But I crack me up! And, he does embarrass easy! All shades of red! Poor kid, had no idea what to say. He did mention that that was the first time that has ever happened to him, and then I told him not to worry, I am scheduled to be back every three months for the rest of my life! It could happen again!
So, I think that if anyone is looking for a good nuclear medicine tech, Bobbie might be looking for a new location to work at!!!
After my CT contrast had time to wind its way through my system, I was off to the CT scanner. That was quick and painless! I was done by 4:45pm when they took me back to the locker containing my purse, jacket and boob.
Another day at the cancer center was over!
So for those of you who are waiting to hear the results, I will find out Friday afternoon, or Monday morning! I will likely send out some text messages if you are in my cell phone and I will also blog the results to the rest of you. As always, your support is overwhelming and generous!
What am I thankful for?! All the very nice and fun techs that work in the office I go to! I am thankful for their ability to play along with all my joking, because that is how I get through days such as this. Humor heals! I am also thankful for the twizzlers that I had waiting for me in the Jeep when I left, and for the soda as big as my head that I drank on the way home. And as always, I am thankful for my hubby's support and for my sweet children (one old enough to be nervous too, and one young enough to keep us busy enough to occasionally forget to be nervous)! And again, I thank all of you who sent me text and e-mail prayers, vibes, and luck! Big 'ol hug and smooch to you all!
Well, bigger deal when your scans are at 1pm! By that point I was starving...I eat when I am nervous, I think I have mentioned that before, and the caffeine headache had set in! They said I could take my medications as I normally do, so I went so far as to digging out the Midol for the caffeine content! I know, I truly am a caffeine junkie! People at work literally GIVE me money, "no need to borrow, please just take it" if I for get my soda money....sad isn't it.
Okay, so it's not like I don't have reserves, I have a few extra pounds packed on, it is not like I am going to starve to death!
I walked into the office where I was going to have my scans done and my tech was about to inhale tacos and a soda...I was joking around about how tacos were my fav, and he politely tucked them away, and offered to save one for me for after my scans. No, I did not take a taco from a starving tech. I assured him I could wait, and that I had twizzlers waiting for me in the car for when I was done! I got checked in and sat done. In the waiting room they were watching the Food Network! Apparently I was not the only one obsessing over food at the moment. I probably wasn't even that hungry, my stomach was just angry that I took my meds on an empty stomach and then threw in so midol on top of that! Yummy! But, the headache did go away which was nice.
So, when they were ready for me, I went to a room...more of a closet, with a recliner, a sink, and an IV pole, with a bright yellow sign that says "Warning: Radioactive Material". After about 5 minutes in the chair with an IV started and something from a syringe circulating, I realized that that Radioactive Material was ME! I know, right?! I was hoping I got to wear a t-shirt out of there with that warning on it! As if I don't have enough t-shirts. So, before a PET scan they give you the radioactive glucose, I believe that is what it is, but also a huge bag of fluids and some lasix (the stuff that makes you pee a lot). So, conveniently the bathroom is located right next door to me and my recliner in the radioactive closet! So for the next hour, or a little more I received IV fluids and then flushed them out, then more fluids and more flushing. Not really the funnest game, but it kept me occupied. I talked to the techs who lingered at the door every once in a while, and time went by. The tech that does most of my scans, we will call him Bobbie, but his name is Matt, is 25 years old and embarrasses easily...oh this is so fun for me, I love it when people embarrass easily!
I went back to the scanning room, got placed in the machine, and waited. Over the top of my feet, I could see the techs all gathering on the other side of the glass wall. They informed me that they were getting ready to start. The sooner the better, those rooms feel like meat lockers! They slowly moved my body into the machine, and then they all got these concerned and then perplexed looks on their faces! ---OH GREAT! ---After a couple of minutes Bobbie came back into the room and asked if I have had surgery on my right side, and if they had implanted something, and with his hands he is making a motion like it could be the size of a plum?! No, no surgery. I have cancer in the rib on that side...had I suddenly grown a massive tumor there?!? He then asked if when I was in the staging room, maybe I had my MP3 player laying on my chest and maybe that was showing up as heat or something?!?? No.... Then I realized that maybe it could be my breast prosthesis (which IS bigger than a plum, I know you were thinking that), so I told him I was wearing one, and went to take it out, and he had bolted out of the room muttering what sounded like "the girls will no more..."! One of the girls came in, I gave it to her, we started again, and that was that. The gel inset used to weigh down the foam prosthesis was showing up on the scan. Whew! That was a scare. The rest of the scan was quiet. I know they all know what it showed, but no one can tell me. I have to wait for the radiologists.
So, after the PET scan I went back to my closet to drink a little banana flavored CT contrast. Sadly, the same contract that has made me feel gaggy in the past, was now very exciting! Because...you guessed it.... it was now 3:30 or 4 o'clock, and I still had not yet had anything to eat or drink! They should have brought it in a champagne glass for as excited as I was! It was yummy....really! Matt, I mean Bobbie, walked by and I flagged him down and told him that I was hurt, because I thought we had something special, and when I tried to hand him my boob, he had bolted! HAHA! I know, creepy! But I crack me up! And, he does embarrass easy! All shades of red! Poor kid, had no idea what to say. He did mention that that was the first time that has ever happened to him, and then I told him not to worry, I am scheduled to be back every three months for the rest of my life! It could happen again!
So, I think that if anyone is looking for a good nuclear medicine tech, Bobbie might be looking for a new location to work at!!!
After my CT contrast had time to wind its way through my system, I was off to the CT scanner. That was quick and painless! I was done by 4:45pm when they took me back to the locker containing my purse, jacket and boob.
Another day at the cancer center was over!
So for those of you who are waiting to hear the results, I will find out Friday afternoon, or Monday morning! I will likely send out some text messages if you are in my cell phone and I will also blog the results to the rest of you. As always, your support is overwhelming and generous!
What am I thankful for?! All the very nice and fun techs that work in the office I go to! I am thankful for their ability to play along with all my joking, because that is how I get through days such as this. Humor heals! I am also thankful for the twizzlers that I had waiting for me in the Jeep when I left, and for the soda as big as my head that I drank on the way home. And as always, I am thankful for my hubby's support and for my sweet children (one old enough to be nervous too, and one young enough to keep us busy enough to occasionally forget to be nervous)! And again, I thank all of you who sent me text and e-mail prayers, vibes, and luck! Big 'ol hug and smooch to you all!
1.16.2008
For those of you that were concerned-
I made it to and home from Kim's Celebration of Life without any major problems with the weather. The wind was pretty bad on my little Jeep and it snowed the last 100 miles, but visibility was never really any issue. There were a few slick spots that the wind complicated a little, but all in all, was a fine drive.
Kim's Celebration was Perfect! I think it was just how she would have wanted it! It truely was a celebration!
It was a little cathartic for me, I cried through the whole thing, for so many, many reasons. She is such a beautiful person, but now she is a beautiful person on the other side.
Now on to scans...a little cranky. If you know me, I am a comfort food person, and veggies and meat don't really qualify in my book as comfort food. Well, not when you take all the good stuff off! My other coping skill is running, and I can't exercise either. Not for at least 48 hours prior to the PET scan. My only other coping skills I have left, are blogging and sleeping. So, I am going to throw this out there and hit the sack!
What am I thankful for?!? I am thankful that Kim and her family have a strong faith for which to cling to through their trials, tribulations, and the joyous times as well. I am thankful for their love and strength, and I am thankful for the big wonderful hugs that I got from her husband and her parents today. I was hoping that some of Kim was there with me in those moments. You can just feel the warmth in their family! All my love!
I am also thankful for all the 'good luck on your scans' text messages that I have been receiving ! I might not respond right away or even at all, but each and everyone is heart felt! I love all of you too!
Kim's Celebration was Perfect! I think it was just how she would have wanted it! It truely was a celebration!
It was a little cathartic for me, I cried through the whole thing, for so many, many reasons. She is such a beautiful person, but now she is a beautiful person on the other side.
Now on to scans...a little cranky. If you know me, I am a comfort food person, and veggies and meat don't really qualify in my book as comfort food. Well, not when you take all the good stuff off! My other coping skill is running, and I can't exercise either. Not for at least 48 hours prior to the PET scan. My only other coping skills I have left, are blogging and sleeping. So, I am going to throw this out there and hit the sack!
What am I thankful for?!? I am thankful that Kim and her family have a strong faith for which to cling to through their trials, tribulations, and the joyous times as well. I am thankful for their love and strength, and I am thankful for the big wonderful hugs that I got from her husband and her parents today. I was hoping that some of Kim was there with me in those moments. You can just feel the warmth in their family! All my love!
I am also thankful for all the 'good luck on your scans' text messages that I have been receiving ! I might not respond right away or even at all, but each and everyone is heart felt! I love all of you too!
1.14.2008
"Kim is Dancing with Jesus"
Kim is my friend---a beautiful, strong, AMAZING woman with an enduring faith! And now, she has ended her almost 6 year battle with breast cancer at the age of 33 years. As her husband so beautifully put it, "Kim is Dancing with Jesus"!
I am happy for Kim, because she is now free of the pain and suffering that was tying her down, and free of the mental fatigue of a declining body.
I pray for her family, her friends, her husband, and her three gorgeous children who will miss her terribly! She will live in their hearts and mine forever and ever, as she watches over them from above!
Kim, Someday I will see you again. Just like you said in your note to me..."I will meet you at the pearly gates, sooner or later! Heaven is our eternal pain-free life!" You got it!
Dance on my Sister!!!! (...maybe put in a good word for me with the big man!) Love, Tracy
Since Kim's "Celebration of Life" will be on Wednesday morning, I have rescheduled my scans for Thursday! Thanks to everyone who has been keeping me in their prayers, and throw one in for Kim's family if you could!
What am I thankful for?! The huge outpouring of support that Kim and her family have in Orange City! It is a beautiful little town!
I am happy for Kim, because she is now free of the pain and suffering that was tying her down, and free of the mental fatigue of a declining body.
I pray for her family, her friends, her husband, and her three gorgeous children who will miss her terribly! She will live in their hearts and mine forever and ever, as she watches over them from above!
Kim, Someday I will see you again. Just like you said in your note to me..."I will meet you at the pearly gates, sooner or later! Heaven is our eternal pain-free life!" You got it!
Dance on my Sister!!!! (...maybe put in a good word for me with the big man!) Love, Tracy
Since Kim's "Celebration of Life" will be on Wednesday morning, I have rescheduled my scans for Thursday! Thanks to everyone who has been keeping me in their prayers, and throw one in for Kim's family if you could!
What am I thankful for?! The huge outpouring of support that Kim and her family have in Orange City! It is a beautiful little town!
1.12.2008
For the love of scans...
Well, I think the melt down has begun, because everyone keeps asking me what is wrong with me...I guess I get a little short at times and a little weepy, and by weepy, I mean I cry if my pen runs out of ink. The other day, I cried so much I was insisting that I have my tearducts plugged and my ovaries removed!!! And I didn't even consciously know why I was feeling or acting that way until one of my friends asked, "So, when are your scans?". I guess sometimes you have friends that know you better than you know yourself!
Thankfully Relay season is now in swing and I have other things and people to concentrate on than just me, my scans, and whether or not I have cancer hiding in my big toe! Really, I lost a boob, how bad could a big toe be to lose...oh damn, flip flops...okay, so there can't be cancer in my big toe!
My scans...they are on Wednesday morning...7am in Omaha...being the morning person I am I plan to sleep right through them! I am having CT scans of my chest, abdomen, and pelvis, and a PET scan. The whole process will take about 4 hours. The CT scans have few rules...no food or drink after midnight. The PET scan is a little more picky. No exercise for two days prior, and the day before, nothing but veggies and protein! Sounds a lot like that No carb diet I tried three times. The first time I made it one day. The second time I made it two days. The third time I made it one day, and vowed never to try that stupid diet again! Okay, so...one more day won't kill me!
As for Relay getting started, I have gotten the chance to do "my hope thing" twice this last week. I got to speak at the Haymarket Park Relay Kick Off in Lincoln and the Otoe County Relay Kickoff in Nebraska City! Both were great opportunities to share my story, sing the praises of the American Cancer Society, and share the IMPORTANCE OF EARLY DETECTION! Doing something always seems to help my spirits! It is nice to feel like this is all happening for a reason...but I still HATE it when someone tells me that!
I get to go to Sesame Street Live with the kiddos, so I need to get going!
What am I thankful for?! My "hope thing" and great big furry Grovers and Elmos!!!
Thankfully Relay season is now in swing and I have other things and people to concentrate on than just me, my scans, and whether or not I have cancer hiding in my big toe! Really, I lost a boob, how bad could a big toe be to lose...oh damn, flip flops...okay, so there can't be cancer in my big toe!
My scans...they are on Wednesday morning...7am in Omaha...being the morning person I am I plan to sleep right through them! I am having CT scans of my chest, abdomen, and pelvis, and a PET scan. The whole process will take about 4 hours. The CT scans have few rules...no food or drink after midnight. The PET scan is a little more picky. No exercise for two days prior, and the day before, nothing but veggies and protein! Sounds a lot like that No carb diet I tried three times. The first time I made it one day. The second time I made it two days. The third time I made it one day, and vowed never to try that stupid diet again! Okay, so...one more day won't kill me!
As for Relay getting started, I have gotten the chance to do "my hope thing" twice this last week. I got to speak at the Haymarket Park Relay Kick Off in Lincoln and the Otoe County Relay Kickoff in Nebraska City! Both were great opportunities to share my story, sing the praises of the American Cancer Society, and share the IMPORTANCE OF EARLY DETECTION! Doing something always seems to help my spirits! It is nice to feel like this is all happening for a reason...but I still HATE it when someone tells me that!
I get to go to Sesame Street Live with the kiddos, so I need to get going!
What am I thankful for?! My "hope thing" and great big furry Grovers and Elmos!!!
1.04.2008
Chemo with kids
This past Monday, New Year's Eve, I had treatment. It was the first time that the kids had gone to treatment with me.
Back when I was getting my therapy at the hospitals cancer center there were a lot of very ill people in the treatment room, and I never felt comfortable exposing my kids to that. When I started going to a cancer center more removed from the hospital and my oldest son continued to ask to go, I decided that we would try it. I know that a lot of times we make up things in our heads that are a lot more scary than what is really happening, but we don't know that because we have never been exposed to it. So, I thought this was a good way for my son to see what chemotherapy was all about and hopefully, if he had created scary visions of what it might be like, these visions would now be dispelled.
My new cancer center has fewer patients, and the patients seem to be more independent, overall. So, with chemo falling on a non school day, I agreed to bring him along. This is when my youngest son decided that he wanted to go too! We packed up the game boys, Nintendo DS's, all the games, and two MP3 players and the boys and I headed off to chemo!
They watched as I was taken to a little staging area, was weighed, and my blood pressure and temperature were taken.
Then, they followed as we were lead back to the big, sun-filled room full of recliners and IV poles where I would be getting my treatment. I picked out a recliner and they each tried to pull up the spinney stools that the doctors sit on. I always have, and still maintain, that you have to go to a lot of school to get the privilege of sitting on one of those spinney stools, so they needed to get up, pick a recliner, and consider med school if they thought those stools looked fun! They piled into the recliner next to me. My youngest watched intently as they placed the needle in my port, drew blood, filled the tubes, and then flushed my port with saline. They then taped the connecting tubes to my sweatshirt while they waited for my blood counts and the results of my kidney and liver functions tests, to see if it was safe to give me my chemotherapy. My youngest son then decided to play his game boy, which my oldest son had yet to look up from. He said in the car on the way, "I don't want to see them put a needle in you." And, he didn't.
The physician's assistant surfaced a few minutes later to go over my blood work, discuss any new symptoms, and check out the newest in personal gaming devices. I turned out that my blood counts were a little off, but nothing too frightening so chemo was a-go as expected.
My chemo nurse came back with a bag of saline and two bags of chemotherapy which she promptly hung on my IV pole with a bunch of tubing.
This is where the boys started to glance up from their games, but only momentarily, to check on me. Since nothing too earth shattering appeared to be happening they continued to play their games while snuggled up together in a recliner next to an empty IV pole. Thank God their IV pole was empty, I thought to myself. Thank God this was happening to me and not to them.
The nurse turned on my pump, and walked away.
My youngest was the first to venture over. He was looking at the tubing as it is disappeared under my sweatshirt, so I asked him, "Do you want to see how I get my medicine?" He just nodded, so I showed him how the chemo drips from the bag, into the pump, through a few feet of tubing and into my port. He touched it once, and was content. I gave him a kiss and a squeeze and he was back to gaming with his brother. A few minutes later his brother took off his MP3 player and was just silently watching me. I could see him out of the corner of my eye, so I turned, and asked, as I had with his brother, "Do you wanna see?" "Sure", he responded. So we went through the same breakdown, and all he said was, "Ouch." I assure him that I was in no pain, and he was happy with this. He snuggled on my lap for a couple of minutes and then was off to torment his brother!
After about the first 45 minutes the boys were now feeling quite at home there in the chemotherapy room, and had become quite keen on the fact that I appeared to be attached to my recliner. They were able to navigate just out of reach of the few feet of tubing that I had when they wanted to pick at each other without getting grabbed and hushed by me. The boys are quite sharp! It wasn't until they decided to lay down on the floor and wrestle that they found out that the IV pump could be unplugged and the pole that I was attached to could then move to anywhere I pleased! As soon as I started towards them, they were on my lap apologizing. I guess they new that I was not going to be happy if I had to chase them down with my drugs trailing behind! They were correct in their assumption! I told them, "The more I have to unplug this the longer we are going to be here!" This was not true, it keeps pumping even when you are unplugged, but it was an effective 'fib', as they seemed to be as ready to get out of there as I was. It is hard for me to sit still and be quite for three hours, just imagine how hard it is for 5 and 8 year old brothers!
Finally, the pump started beeping, a familiar sound, which seems to sing out, "Let's get outta here!" The nurse came over right on cue, pulled out my needle slapped on a bandaid and sent us on out way!
Amen. All three of us...relatively unscathed.
What am I thankful for?! I am so very thankful that my children are healthy! I hope that everyone has a Happy and Healthy NEW YEAR! Happy 2008!
Back when I was getting my therapy at the hospitals cancer center there were a lot of very ill people in the treatment room, and I never felt comfortable exposing my kids to that. When I started going to a cancer center more removed from the hospital and my oldest son continued to ask to go, I decided that we would try it. I know that a lot of times we make up things in our heads that are a lot more scary than what is really happening, but we don't know that because we have never been exposed to it. So, I thought this was a good way for my son to see what chemotherapy was all about and hopefully, if he had created scary visions of what it might be like, these visions would now be dispelled.
My new cancer center has fewer patients, and the patients seem to be more independent, overall. So, with chemo falling on a non school day, I agreed to bring him along. This is when my youngest son decided that he wanted to go too! We packed up the game boys, Nintendo DS's, all the games, and two MP3 players and the boys and I headed off to chemo!
They watched as I was taken to a little staging area, was weighed, and my blood pressure and temperature were taken.
Then, they followed as we were lead back to the big, sun-filled room full of recliners and IV poles where I would be getting my treatment. I picked out a recliner and they each tried to pull up the spinney stools that the doctors sit on. I always have, and still maintain, that you have to go to a lot of school to get the privilege of sitting on one of those spinney stools, so they needed to get up, pick a recliner, and consider med school if they thought those stools looked fun! They piled into the recliner next to me. My youngest watched intently as they placed the needle in my port, drew blood, filled the tubes, and then flushed my port with saline. They then taped the connecting tubes to my sweatshirt while they waited for my blood counts and the results of my kidney and liver functions tests, to see if it was safe to give me my chemotherapy. My youngest son then decided to play his game boy, which my oldest son had yet to look up from. He said in the car on the way, "I don't want to see them put a needle in you." And, he didn't.
The physician's assistant surfaced a few minutes later to go over my blood work, discuss any new symptoms, and check out the newest in personal gaming devices. I turned out that my blood counts were a little off, but nothing too frightening so chemo was a-go as expected.
My chemo nurse came back with a bag of saline and two bags of chemotherapy which she promptly hung on my IV pole with a bunch of tubing.
This is where the boys started to glance up from their games, but only momentarily, to check on me. Since nothing too earth shattering appeared to be happening they continued to play their games while snuggled up together in a recliner next to an empty IV pole. Thank God their IV pole was empty, I thought to myself. Thank God this was happening to me and not to them.
The nurse turned on my pump, and walked away.
My youngest was the first to venture over. He was looking at the tubing as it is disappeared under my sweatshirt, so I asked him, "Do you want to see how I get my medicine?" He just nodded, so I showed him how the chemo drips from the bag, into the pump, through a few feet of tubing and into my port. He touched it once, and was content. I gave him a kiss and a squeeze and he was back to gaming with his brother. A few minutes later his brother took off his MP3 player and was just silently watching me. I could see him out of the corner of my eye, so I turned, and asked, as I had with his brother, "Do you wanna see?" "Sure", he responded. So we went through the same breakdown, and all he said was, "Ouch." I assure him that I was in no pain, and he was happy with this. He snuggled on my lap for a couple of minutes and then was off to torment his brother!
After about the first 45 minutes the boys were now feeling quite at home there in the chemotherapy room, and had become quite keen on the fact that I appeared to be attached to my recliner. They were able to navigate just out of reach of the few feet of tubing that I had when they wanted to pick at each other without getting grabbed and hushed by me. The boys are quite sharp! It wasn't until they decided to lay down on the floor and wrestle that they found out that the IV pump could be unplugged and the pole that I was attached to could then move to anywhere I pleased! As soon as I started towards them, they were on my lap apologizing. I guess they new that I was not going to be happy if I had to chase them down with my drugs trailing behind! They were correct in their assumption! I told them, "The more I have to unplug this the longer we are going to be here!" This was not true, it keeps pumping even when you are unplugged, but it was an effective 'fib', as they seemed to be as ready to get out of there as I was. It is hard for me to sit still and be quite for three hours, just imagine how hard it is for 5 and 8 year old brothers!
Finally, the pump started beeping, a familiar sound, which seems to sing out, "Let's get outta here!" The nurse came over right on cue, pulled out my needle slapped on a bandaid and sent us on out way!
Amen. All three of us...relatively unscathed.
What am I thankful for?! I am so very thankful that my children are healthy! I hope that everyone has a Happy and Healthy NEW YEAR! Happy 2008!
12.12.2007
Treatment
I had treatment again this week. It went well. No surprises. I had Herceptin and Zometa, as I have been, my lab was drown and my blood counts are only a hair below normal, and I visited with the PA instead of my doctor, as he was out of the office. My MUGA scan indicated that my EF was up to 57%. It was at 50% 3 months ago, so that was good news. I asked that we see if I can get a PET scan the next time I have scans instead of the multiple CT scans. I haven't had a PET scan since June '06 and I have changed insurance companies, so hopefully they will approve it! She didn't see any reason why my doctor would disagree with the idea. I haven't really been having any new symptoms, so I felt no need to have scans before the holidays. If you rememeber, I had back surgery last Thanksgiving and a mastectomy last Christmas, and spent New Years Eve on the couch with drain tube while my husband and friends partied around me! This year I was looking to secure an uneventful holiday season! I have been having scans every 3 months since my heavy chemo ended, and with my last scans being in August, I will probably be getting them scheduled shortly...but not until after the new year! If I have cancer hiding in my big toe I do not want to know about it until after the New Years bashes are over! But, let me reiterate...I am having NO new symptoms, and I have no reason to be lieve that I have any new cancer anywhere!
So, the running. It has been going okay. I am running 4-5 miles a day, 3-5 times per week. My biggest issue seems to be my knees, not my back, so I guess my age is more to blame than my cancer for any difficulty that I am having. But, I am just stubborn enough to run through it. Lord help me if I don't run this half marathon in May! I will need some patience and understanding!
What am I thankful for?! All the wonderful people that I have met through the Relay that are asking me to come speak at their events! I have a few friends that are going through a lot with their cancers right now, or cancer in their family, and it hurts my heart so much. I told my husband just last night that I wished it was closer to the first of the year when the Relay starts to kick back into gear, because I was really needing to feel like I was doing something to Fight Back! I hate to feel helpless! I suppose you all know how that feels, as we all seemed to be touch by cancer in one way or another.
Later Gators!
So, the running. It has been going okay. I am running 4-5 miles a day, 3-5 times per week. My biggest issue seems to be my knees, not my back, so I guess my age is more to blame than my cancer for any difficulty that I am having. But, I am just stubborn enough to run through it. Lord help me if I don't run this half marathon in May! I will need some patience and understanding!
What am I thankful for?! All the wonderful people that I have met through the Relay that are asking me to come speak at their events! I have a few friends that are going through a lot with their cancers right now, or cancer in their family, and it hurts my heart so much. I told my husband just last night that I wished it was closer to the first of the year when the Relay starts to kick back into gear, because I was really needing to feel like I was doing something to Fight Back! I hate to feel helpless! I suppose you all know how that feels, as we all seemed to be touch by cancer in one way or another.
Later Gators!
11.20.2007
Thanksgiving
If I have loved you and you have loved me back....THANK YOU!
If I have loved you and you have not loved me back....SHAME ON YOU.
If I have hurt you....PLEASE FORGIVE ME!
If you have hurt me....I FORGIVE YOU!
What am I thankful for?! my 2 sons, my husband, my parents, my sister and her family, my grandparents, my in-laws, my extended family, my friends and coworkers, my children's daycare and school teachers, my doctors and chemo nurses, my faith, survivors, Relay supporters, my friends who have passed on and I that they have taught me, my BLOG followers, the ACS staff and volunteers, the Heroes of Hope, my Lenny Kravitz CD, rainbows, dancing in the rain, the smell of rain, white sand beaches, holiday programs, breast cancer walks, brain cancer runs, the treadmill, my psychologist, ladybugs, e-mail and texting, flowers especially purple irises and lilacs, tacos, dancing anywhere and everywhere, my cherry red jeep aka happiness on wheels, Rascal Flatts, hugs, kisses, grilling out, compassion, red nail polish, forgiveness, diamonds, diet dr. pepper, the Big Bang Theory, Orange City, color stay make-up, cliff jumping, mechanical bull riding, monavie, back and foot rubs, Herceptin, Tuesdays with Morrie, Bruce Willis, jeans, my Asics, twizzlers, happy dreams, fuzzy socks, RV's, singing in the shower, my doggie, rodeos, HOPE, my MP3 player, watching grass grow, swimming pools, sticky notes, flip flops, music, christmas lights, pasties, courage, 5Ks, a warm home and a snuggy blanket on a dreary day, laughing till you cry, Target, weddings in Key West, Boston Legal, the Huskers no matter what, cheese dip, tatoos, smiles and winks, peanut butter Twix, pink ribbons, team PERSEVERANCE, dragonflies, the first snow of the year, bananas, turtles, George Strait, running, star gazing, guitars, Coors Light, babies, monkey jammies...life is good!
HOPE YOU ALL HAVE A VERY HAPPY THANKSGIVING, AND TAKE THE TIME TO COUNT YOUR BLESSINGS!
If I have loved you and you have not loved me back....SHAME ON YOU.
If I have hurt you....PLEASE FORGIVE ME!
If you have hurt me....I FORGIVE YOU!
What am I thankful for?! my 2 sons, my husband, my parents, my sister and her family, my grandparents, my in-laws, my extended family, my friends and coworkers, my children's daycare and school teachers, my doctors and chemo nurses, my faith, survivors, Relay supporters, my friends who have passed on and I that they have taught me, my BLOG followers, the ACS staff and volunteers, the Heroes of Hope, my Lenny Kravitz CD, rainbows, dancing in the rain, the smell of rain, white sand beaches, holiday programs, breast cancer walks, brain cancer runs, the treadmill, my psychologist, ladybugs, e-mail and texting, flowers especially purple irises and lilacs, tacos, dancing anywhere and everywhere, my cherry red jeep aka happiness on wheels, Rascal Flatts, hugs, kisses, grilling out, compassion, red nail polish, forgiveness, diamonds, diet dr. pepper, the Big Bang Theory, Orange City, color stay make-up, cliff jumping, mechanical bull riding, monavie, back and foot rubs, Herceptin, Tuesdays with Morrie, Bruce Willis, jeans, my Asics, twizzlers, happy dreams, fuzzy socks, RV's, singing in the shower, my doggie, rodeos, HOPE, my MP3 player, watching grass grow, swimming pools, sticky notes, flip flops, music, christmas lights, pasties, courage, 5Ks, a warm home and a snuggy blanket on a dreary day, laughing till you cry, Target, weddings in Key West, Boston Legal, the Huskers no matter what, cheese dip, tatoos, smiles and winks, peanut butter Twix, pink ribbons, team PERSEVERANCE, dragonflies, the first snow of the year, bananas, turtles, George Strait, running, star gazing, guitars, Coors Light, babies, monkey jammies...life is good!
HOPE YOU ALL HAVE A VERY HAPPY THANKSGIVING, AND TAKE THE TIME TO COUNT YOUR BLESSINGS!
11.02.2007
What is a BLOG!?
Wow, I haven't been here forever! Sorry about that! I don't even know where to begin!~
I started running again, so that I could run a 5k in KC in memory of a friend of mine. It was called Head for a Cure and benefits supportive resources and treatment for individuals with brain cancer and their families! I think my friend was helping me along from above, because I ran the whole 3.1 miles, and in training (I say training, but is 2 weeks of jogging taining?) I had never gotten further than 2 miles without walking! Bless her!!! (and her family each and every day!)
Then I did the Komen 5k for Breast cancer in Omaha. That was a little harder because of that fantastic hill right at the end!!! Ugh! Why can't they make the end down hill when you really need it?! I ran that with a friend of mine..it was her first race, and she did AWESOME! I am so proud of her, and so happy that she has the running bug! Speaking of running bugs, I have yet another friend who is running the NY marathon this weekend!!!! Talk about strength and endurance! She is so amazing! I am in awe of her abilities, and will be sending her good vibes this weekend.
Then what? Oh, Relay Summit in Dallas! I went there for my "hope thing"! I was totally unprepared for the range of emotions and the energy that was generated there! It was incredible! There was about 1400 people there, I think. That is a lot of people when all gathered into one room. I was able to complete all my agenda items, but I must say that there were a lot of ups and downs. The mock ceremonies moved me from excited and motivated to sad and crying. And then there was the breakout session with the PR people from the Amer. Cancer Society that scared the crap out of me (but gave me a lot of good information that I can take with me)!!! I was emotionally all over the board in just a few short days! I am so glad that I had the opportunity to attend, and I am blessed to be able to be a part of the ACS and am able to help them get their message out!
This weekend I will be telling my cancer story as well as my ACS and Relay stories at the NE Relay Summit as a part of "my hope thing"! I am hoping to get people motivated for Relay, as Relay never really ends (I am learning that quickly!), and we will begin our fundraising efforts again soon! The Dallas Relay Summit has brought about several speaking opportunities for me, and I am anxious to get started.
On a sad note, I have a friend that is being tested to the max right now. She is about my age with 3 young children and has been battling breast cancer since she was 27 years old. Most recently she has had a tough bout with metastatic disease in her bones and brain. She has just had her 2nd brain surgery and is going to do gamma knife radiation to her brain this next week. She also has a broken arm due to cancer in her bone, and her other side is weak due to the brain mets. Through all of this, she has been the most amazing woman, with a strong faith, and more courage than you can imagine! They are having a benefit for her on Monday, November 12th. I will not be able to go, as she lives about 4 hours away, but I do plan to send a check. They are raising money to help her family pay for medical bills and get into a handicap accessible home! If anyone out there wants to throw a check in with mine, let me know as soon as possible. I am sure her family would be eternally grateful!
What am I thankful for?! Each day that I wake up with the ability to go out and experience the world and try to make a difference in the only ways I know how! I am thankful for little boys that are so resilient and for a husband who helps us all keep it together (or at least tries to)! I am also thankful for days spent laying on the beach...even if it was with just one boob!!! Trust me! It was an experience. I put a temporary tatoo over my mastectomy scar that was a pink ribbon and said survivor and a pasty on the "good" side! See, I am even spreading breast cancer awareness while on vacation...and, I didn't even have to say a word! Makes for some interesting vacation photos! Probably won't put those out on the coffee table! Oh hell...I probably will! I may have one boob, but I am alive!!! I am thankful to be alive!
I started running again, so that I could run a 5k in KC in memory of a friend of mine. It was called Head for a Cure and benefits supportive resources and treatment for individuals with brain cancer and their families! I think my friend was helping me along from above, because I ran the whole 3.1 miles, and in training (I say training, but is 2 weeks of jogging taining?) I had never gotten further than 2 miles without walking! Bless her!!! (and her family each and every day!)
Then I did the Komen 5k for Breast cancer in Omaha. That was a little harder because of that fantastic hill right at the end!!! Ugh! Why can't they make the end down hill when you really need it?! I ran that with a friend of mine..it was her first race, and she did AWESOME! I am so proud of her, and so happy that she has the running bug! Speaking of running bugs, I have yet another friend who is running the NY marathon this weekend!!!! Talk about strength and endurance! She is so amazing! I am in awe of her abilities, and will be sending her good vibes this weekend.
Then what? Oh, Relay Summit in Dallas! I went there for my "hope thing"! I was totally unprepared for the range of emotions and the energy that was generated there! It was incredible! There was about 1400 people there, I think. That is a lot of people when all gathered into one room. I was able to complete all my agenda items, but I must say that there were a lot of ups and downs. The mock ceremonies moved me from excited and motivated to sad and crying. And then there was the breakout session with the PR people from the Amer. Cancer Society that scared the crap out of me (but gave me a lot of good information that I can take with me)!!! I was emotionally all over the board in just a few short days! I am so glad that I had the opportunity to attend, and I am blessed to be able to be a part of the ACS and am able to help them get their message out!
This weekend I will be telling my cancer story as well as my ACS and Relay stories at the NE Relay Summit as a part of "my hope thing"! I am hoping to get people motivated for Relay, as Relay never really ends (I am learning that quickly!), and we will begin our fundraising efforts again soon! The Dallas Relay Summit has brought about several speaking opportunities for me, and I am anxious to get started.
On a sad note, I have a friend that is being tested to the max right now. She is about my age with 3 young children and has been battling breast cancer since she was 27 years old. Most recently she has had a tough bout with metastatic disease in her bones and brain. She has just had her 2nd brain surgery and is going to do gamma knife radiation to her brain this next week. She also has a broken arm due to cancer in her bone, and her other side is weak due to the brain mets. Through all of this, she has been the most amazing woman, with a strong faith, and more courage than you can imagine! They are having a benefit for her on Monday, November 12th. I will not be able to go, as she lives about 4 hours away, but I do plan to send a check. They are raising money to help her family pay for medical bills and get into a handicap accessible home! If anyone out there wants to throw a check in with mine, let me know as soon as possible. I am sure her family would be eternally grateful!
What am I thankful for?! Each day that I wake up with the ability to go out and experience the world and try to make a difference in the only ways I know how! I am thankful for little boys that are so resilient and for a husband who helps us all keep it together (or at least tries to)! I am also thankful for days spent laying on the beach...even if it was with just one boob!!! Trust me! It was an experience. I put a temporary tatoo over my mastectomy scar that was a pink ribbon and said survivor and a pasty on the "good" side! See, I am even spreading breast cancer awareness while on vacation...and, I didn't even have to say a word! Makes for some interesting vacation photos! Probably won't put those out on the coffee table! Oh hell...I probably will! I may have one boob, but I am alive!!! I am thankful to be alive!
8.21.2007
Relay 2007 Wrap up
Celebrate. Remember. Fight Back!
This blog is the best way to reach as many of the people that supported team Perseverance as possible, therefore, I am going to use this as my main method to THANK YOU ALL for your monetary (or otherwise) support of Team Perseverance!!!
Tonight we had our team captain Relay 2007 Wrap-up. I get to attend these meetings and events as a representative of all of you who are so much a part of our team, whether it be as a team member raising funds and walking all night long, a donor who donates your hard earned money because you believe in what we do, or simply as a much needed cheerleader who provides emotional support or word of mouth advertisement of our mission!
At tonight's wrap-up party we were told that this years Haymarket Park RFL raised $340,600+ dollars towards research, advocacy, education and services! This is amazing and proves that the power of friendship, compassion, and community CAN MAKE A DIFFERENCE!
Team Perseverance raised $21,652.40 of that amount!!!!! We hit and once gain SURPASSED the goal we set for ourselves!
I was presented with the one and only DIAMOND LEVEL FUNDRAISING SIGN of the night, and received a standing ovation...this is so humbling, as I know the credit belongs out there with all of you, and I appreciate all that you do to get Team Perseverance to where it is, which is leading the way to finding a CURE for this deadly disease!
The ACS funds more than $120 MILLION in cancer research a year! And has funded 3 BILLION dollars of cancer research since 1946, so you can see what a huge impact we are making! This does not even touch on the advocacy, education and services that they provide to cancer patients and their families! If it was not for the advancements in cancer treatments over the last even just 10 years, I would not be here 2 1/2 years following a diagnosis of advanced breast cancer. I owe my life to this valuable organization, and I hope that you all, with your own personal reasons for supporting the ACS's RFL will understand my gratitude and will also consider supporting us again next year!
Hope, Love, and Respect,
Tracy
What am I thankful for?! All the wonderful people that I was able to represent tonight!
8.20.2007
Other stuff
My doctor looked at my MUGA results and decided that I should have an ECHO done to check out my heart a little further. So, I did that last week and have heard nothing with regards to how it turned out. No news is almost always good news! Treatment was pretty uneventful. I met a woman that was just starting her treatment. She was great, and we had a very nice talk. I appreciate all the moments that I get with other cancer patients...we learn from each other and draw strength with each others support.
I was in Dallas this past weekend for a training session in order to do my 'hope thing'! It was a great time! I wasn't there very long, but I met some very amazing and passionate people.
What am I thankful for?! My Relay family!
I was in Dallas this past weekend for a training session in order to do my 'hope thing'! It was a great time! I wasn't there very long, but I met some very amazing and passionate people.
What am I thankful for?! My Relay family!
Blog #100
Well, it seems that on the day of my 100th BLOG I had a prayer answered!
When I found out that I not only had cancer but that it was an aggresive type and it had spread to my liver and possibly my bones, I sat down on the floor and tried to remember anything I could from when I was 2 and 5 years old. I came up with next to nothing...a few things that I am sure I remember not from the actual event but from the photos I have seen through the years. That day, the day they told me I had METASTATIC breast cancer, my kids were only 2 and 5 years old. If I died in the next year would they even remember me outside of the photos we take? I was guessing probably not. I prayed that night that God please let me live long enough to get my baby into school. He was little, I was certain he needed a mommy. And, then my oldest son would be 8 and would have memories that he could share about me....and more time....we all needed more time!
TODAY, my prayer was answered. I took my little precious baby to school and his big brother too! This is a day that was sent to me from the Heavens, and I am so grateful!
The boys had great days at school, and we all went to dinner this evening to celebrate, and then ran back to our cars in the POURING rain! Life when it is hard...is VERY hard, but when it is good....it is VERY good! Today was a VERY GOOD day!
What am I thankful for?! The 1st day of school, all the pictures that we have to capture our everyday moments and those special moments you never want to forget, friends that are willing to look at all your pictures I took of the first day of school (I took a picture every 10 feet from when the kids got up to when they sat down in their classrooms), and kisses.
When I found out that I not only had cancer but that it was an aggresive type and it had spread to my liver and possibly my bones, I sat down on the floor and tried to remember anything I could from when I was 2 and 5 years old. I came up with next to nothing...a few things that I am sure I remember not from the actual event but from the photos I have seen through the years. That day, the day they told me I had METASTATIC breast cancer, my kids were only 2 and 5 years old. If I died in the next year would they even remember me outside of the photos we take? I was guessing probably not. I prayed that night that God please let me live long enough to get my baby into school. He was little, I was certain he needed a mommy. And, then my oldest son would be 8 and would have memories that he could share about me....and more time....we all needed more time!
TODAY, my prayer was answered. I took my little precious baby to school and his big brother too! This is a day that was sent to me from the Heavens, and I am so grateful!
The boys had great days at school, and we all went to dinner this evening to celebrate, and then ran back to our cars in the POURING rain! Life when it is hard...is VERY hard, but when it is good....it is VERY good! Today was a VERY GOOD day!
What am I thankful for?! The 1st day of school, all the pictures that we have to capture our everyday moments and those special moments you never want to forget, friends that are willing to look at all your pictures I took of the first day of school (I took a picture every 10 feet from when the kids got up to when they sat down in their classrooms), and kisses.
8.06.2007
No tears here!
Okay, from what I have gathered from the teary e-mails I have gotten from people, my last e-mail does not adequately express the humor and joy that is in my life...the everyday oddities that are what we are all about. We don't just talk about dying here! Geesh.
Boobs:
Forgive me, but this story is going to be about boobs(if the title didn't tip you off), so if that weirds you out, you can stop reading now....
So I am going to make this fairly elementary. I have one boob, and a few prosthetic boobs that I switch out on the other side. I have the swim boob(pretty self explanitory), there is the fancy going out boob (for cute little outfits), and the cotton fill boob (which would be the boob equivalent of the granny panty). So often times when we are home (without guests) I have a tendency to go uniboober and the prosthetic boobs get left lying around. My oldest son could walk past one all day and not even notice it, but my youngest son can not walk past one without giving it a little squeeze! (I know, there are guys high-fiving all over right now) So...the other day my youngest son picked one up, held it to his chest and danced around singing "I have a boobie, I have a boobie!" That is when my oldest son decided to chime in and grabbed one out of my closet and put it to his chest and said, "Look mom! Now we all have one boob!!!" ~Those are team players!
Rain:
The other day in the middle of a down pour I danced in the rain with a friend! Everyone should try that sometime...it was VERY good for the soul! And...everyone should have the kind of friends that are willing to do it with you without batting an eye! Luckily I have several of those kinds of friends. I am forever blessed.
What am I thankful for?! Rain and the love and humor that my children provide me with daily!
Boobs:
Forgive me, but this story is going to be about boobs(if the title didn't tip you off), so if that weirds you out, you can stop reading now....
So I am going to make this fairly elementary. I have one boob, and a few prosthetic boobs that I switch out on the other side. I have the swim boob(pretty self explanitory), there is the fancy going out boob (for cute little outfits), and the cotton fill boob (which would be the boob equivalent of the granny panty). So often times when we are home (without guests) I have a tendency to go uniboober and the prosthetic boobs get left lying around. My oldest son could walk past one all day and not even notice it, but my youngest son can not walk past one without giving it a little squeeze! (I know, there are guys high-fiving all over right now) So...the other day my youngest son picked one up, held it to his chest and danced around singing "I have a boobie, I have a boobie!" That is when my oldest son decided to chime in and grabbed one out of my closet and put it to his chest and said, "Look mom! Now we all have one boob!!!" ~Those are team players!
Rain:
The other day in the middle of a down pour I danced in the rain with a friend! Everyone should try that sometime...it was VERY good for the soul! And...everyone should have the kind of friends that are willing to do it with you without batting an eye! Luckily I have several of those kinds of friends. I am forever blessed.
What am I thankful for?! Rain and the love and humor that my children provide me with daily!
8.05.2007
No longer the kid at the back of the class
So, this whole cancer thing has really changed my perspective on things. I used to be so nervous talking in class that when I was in college I signed up for classes that I knew would have 100+ students in them! And...sadly the communications prerequisite to grad school really held me back. I was terrified to get up and talk in front of a class full of students. I guess having cancer has made me realize what things you should be scared of and what things just aren't worth worrying about. In the last year I have been to 3 cancer related funerals, and I feel somewhat desperate to get the word out and to get people motivated to help find a cure...for any and all types of cancer!
This years relay proved to be a huge success with our team raising somewhere near $21000! That is so AWESOME! The power of community and friendship! It was a little out of my comfort zone though, as I spoke at the event and for TV, radio, and newspaper interviews! I guess I am going to use my misfortune for good...to try and help others.
My oldest son is not so sure about all of this. I think the relay and all the publicity surrounding it has been hard on him and has gotten him thinking about all of this. The other night he came down from his room crying because he couldn't sleep. He was thinking about my cancer. So, I put him in bed with me, and we snuggled. After some silence, I thought he was asleep, but no he was just thinking. After a couple of minutes passed, her said "Mom, why did God have to give you cancer?" I was honest, I don't know why God gave me cancer. I said "Maybe God knew that if I got cancer I would do everything I could to help other people with cancer, and maybe if I didn't have cancer I wouldn't do that." He replied "But you are the nicest person I know, you would help people anyway." What do you say to that? It broke my heart. I just told him that sometime things happen to us, and we don't know why they are happening at the time, but later in life it might make more sense to us. He was not happy with that answer, but that is really all I had to give.
I had my scans last week. I had CT's of my chest, abdomen and pelvis, and a MUGA scan to check my heart. The only cancer they can see at this time is in my one rib. So, everything is still stable on that front! PERFECT!
The MUGA scan showed that my EF has dropped another 10%. It has now dropped 27% in the last 6 months, but it is still at a functioning level. It is at 50%. If it gets down to < 40% we will have to take a look at the big picture and decide what needs to be done differently.
All is good, I can still ride the mechanical bull in Cheyenne without hurting myself! ....not for 8 seconds though, but come on now, I couldn't have done that 10 years ago either!
What am I thankful for?! Days at the pool, snuggling my boys, and my hubby! Happy 12th Anniversary, Honey!
This years relay proved to be a huge success with our team raising somewhere near $21000! That is so AWESOME! The power of community and friendship! It was a little out of my comfort zone though, as I spoke at the event and for TV, radio, and newspaper interviews! I guess I am going to use my misfortune for good...to try and help others.
My oldest son is not so sure about all of this. I think the relay and all the publicity surrounding it has been hard on him and has gotten him thinking about all of this. The other night he came down from his room crying because he couldn't sleep. He was thinking about my cancer. So, I put him in bed with me, and we snuggled. After some silence, I thought he was asleep, but no he was just thinking. After a couple of minutes passed, her said "Mom, why did God have to give you cancer?" I was honest, I don't know why God gave me cancer. I said "Maybe God knew that if I got cancer I would do everything I could to help other people with cancer, and maybe if I didn't have cancer I wouldn't do that." He replied "But you are the nicest person I know, you would help people anyway." What do you say to that? It broke my heart. I just told him that sometime things happen to us, and we don't know why they are happening at the time, but later in life it might make more sense to us. He was not happy with that answer, but that is really all I had to give.
I had my scans last week. I had CT's of my chest, abdomen and pelvis, and a MUGA scan to check my heart. The only cancer they can see at this time is in my one rib. So, everything is still stable on that front! PERFECT!
The MUGA scan showed that my EF has dropped another 10%. It has now dropped 27% in the last 6 months, but it is still at a functioning level. It is at 50%. If it gets down to < 40% we will have to take a look at the big picture and decide what needs to be done differently.
All is good, I can still ride the mechanical bull in Cheyenne without hurting myself! ....not for 8 seconds though, but come on now, I couldn't have done that 10 years ago either!
What am I thankful for?! Days at the pool, snuggling my boys, and my hubby! Happy 12th Anniversary, Honey!
7.08.2007
Did I forget a health update?
I had lab and chemo last week. It was uneventful. I have been having nearly daily headaches, so they did an MRI of my brain, which came out cancer free! Thank goodness! The doc thinks that I am having muscle tension headaches from the back problems that I have as a result of the radiation and compression fracture in my spine. Which is what I thought was probably happening. He gave me some muscle relaxers and told me to take Advil. It is working out pretty good. So, on the medical front, things are going WELL!
What else am I thankful for?! Good MRI results!
What else am I thankful for?! Good MRI results!
Crazy Summer Months
Where do I begin?!
On a personal level, we have been busy with coach pitch baseball for Skye and tee ball for Laken. Both of the boys are doing great! Tee ball is fun to watch because the kids look so little! Half are chasing butterflys and the other half are making dirt castles in the field! Coach pitch is fun, because the boys are really starting to understand the game, and are getting into it! We also spent a week in Key West for my sisters wedding! It was the first time that the kids had been to the beach or snorkeled! It was a great time! I also got to go parasailing with my dad and with Dan, so that was a good time! We saw two HUGE sea turtles and a dolphin! It is pretty layed back there, and that is exactly what I was needing.
On a volunteer level, I received an award through my office for volunteerism, and got to take a little road trip to KC to meet the Regional Commissioner. I have also been chosen as the 2007-2008 Hero of Hope for the American Cancer Society. I affectionately refer to the honor as "my hope thing", because I think the word "Hero" is a little strong and don't feel comfortable in any sense referring to myself as one. I think I do what I do to keep myself grounded and busy, I am not sure that is a Hero thing, but if I can use this opportunity to talk to others who feel down about their cancer, help the ACS who has helped me, and help find a cure to this disease, I will do it! I will be in Dallas in August for my training, and again in October for my recognition and whatnot. I say whatnot, because I don't really know what this trip all entails! Probably a good thing! As far as the Relay goes, we have done a benefit concert, a golf outing and a 7 K run, with all the benefits going to the Relay. It has been a lot of fun, but also has been a lot of work, and taxing on my friends! I can't even begin to tell you how much time, energy, and funding has been donated by my friends. It is unbelievable how supportive they have been, and there is no way I will ever be able to repay them for all they have done. I hope they know how much this means to me, and how many people they are helping! It is not all about me, everyone is affected by cancer, whether they themselves have heard the works "You have cancer" or they have a friend or family member with cancer or who has died from cancer, all these people are helped.
What am I thankful for?! Quiet moments by the beach, the support of friends, summers filled with baseball games, and unconditional love.
On a personal level, we have been busy with coach pitch baseball for Skye and tee ball for Laken. Both of the boys are doing great! Tee ball is fun to watch because the kids look so little! Half are chasing butterflys and the other half are making dirt castles in the field! Coach pitch is fun, because the boys are really starting to understand the game, and are getting into it! We also spent a week in Key West for my sisters wedding! It was the first time that the kids had been to the beach or snorkeled! It was a great time! I also got to go parasailing with my dad and with Dan, so that was a good time! We saw two HUGE sea turtles and a dolphin! It is pretty layed back there, and that is exactly what I was needing.
On a volunteer level, I received an award through my office for volunteerism, and got to take a little road trip to KC to meet the Regional Commissioner. I have also been chosen as the 2007-2008 Hero of Hope for the American Cancer Society. I affectionately refer to the honor as "my hope thing", because I think the word "Hero" is a little strong and don't feel comfortable in any sense referring to myself as one. I think I do what I do to keep myself grounded and busy, I am not sure that is a Hero thing, but if I can use this opportunity to talk to others who feel down about their cancer, help the ACS who has helped me, and help find a cure to this disease, I will do it! I will be in Dallas in August for my training, and again in October for my recognition and whatnot. I say whatnot, because I don't really know what this trip all entails! Probably a good thing! As far as the Relay goes, we have done a benefit concert, a golf outing and a 7 K run, with all the benefits going to the Relay. It has been a lot of fun, but also has been a lot of work, and taxing on my friends! I can't even begin to tell you how much time, energy, and funding has been donated by my friends. It is unbelievable how supportive they have been, and there is no way I will ever be able to repay them for all they have done. I hope they know how much this means to me, and how many people they are helping! It is not all about me, everyone is affected by cancer, whether they themselves have heard the works "You have cancer" or they have a friend or family member with cancer or who has died from cancer, all these people are helped.
What am I thankful for?! Quiet moments by the beach, the support of friends, summers filled with baseball games, and unconditional love.
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