In Honor of Tracy...

There will be a viewing for Tracy on Saturday and Sunday February 26th and 27th, 2011 from 9am-8pm with family greeting friends on Sunday from 6-8pm at:
Lincoln Memorial
6800 S 14th Street
Lincoln, NE 68512

The funeral will be on Monday February 28th, 2011 at 10am at:
Southwood Luthern Church
9300 S 40th Street
Lincoln, NE 68516

Flowers can be delivered to Lincoln Memorial or if you would like to help Tracy keep FIGHTING the battle against cancer you can donate to her American Cancer Society Relay for Life Team (Team Perseverance) at:

http://main.acsevents.org/site/TR?pg=team&fr_id=32038&team_id=888017

"ATTITUDE is everything!"

A new beginning...

Today at 9:20am I received my wings! ...I'm crusin the beach in my shiney new jeep with my hair blowing in the breeze and my dog Taz riding shotgun!

What I am thankful for: HEAVEN!!

Hello From the Hospital....

Just wanted to let everyone know that I have made the decision to move from home healthcare to hospice care through St. Elizabeth as soon as I get sprung from the hospital. My cancer has spread and my doctor and I have decided it would be best to stop treatment. Much of my pain stems from new tumors in my abdomen and liver. Also from my neck tumor which is pushing on my spinal cord and causing paralysis.

What I am thankful for:
Everything anybody has ever done for me!!!!!!!!!!!!!!!!!! GOD BLESS!!

Sometimes if you wait, you get a better blog title

When I went in to Dr. Langdons office last Monday my dr. suggested hospice because his first job as a dr. is to not harm but to make better. M.D Anderson wasn't an option because you have to be less than 60% wheelechair bound and I am 100% wheelechair bound . However, we have found some studies that might be possible in the last week and Dr. Langdons office is going to study them more in the next few days. I will see him again on Monday for more scans . Once again, things are looking up!
What I am thankful for: All the little moments, the kisses I get when the boys get home from school, and Sweetarts before bed.

Email

FYI:
No more email to roadrunner. The Acct is not working and getting cancelled. Tmarymoon@gmail.com will be my schedule and business account.

ATTITUDE is everything!  *Tracy

Wanted everyone to know the last day of radiation was yesterday. The radiation is suppose to keep working for two more months. While the cancer has still left me wheelchair bound, I have an appointment with Dr. Langdon and the genetic counslor on Monday. The last day of radiation was so muh fun. The techs recorded " Tracy" by the Cufflinks and " SugarSugar" by Tommy Roe and played them for me. I will make a decision about the possibility of MD Anderson or Mayo in the next few weeks. Thank you to everyone who sent flowers , gifts, cards, facebook messages, and food.
Thankful for?! Rocky Road ice cream ( going to rename Smoothe Sailing). Fun socks. Warm hats. The best caregiving family in the world. Hope and Love.

Today

ATTITUDE is everything!  *Tracy

On Jan 17, 2011 7:39 AM, "Tracy Harnly" <tmarymoon@gmail.com> wrote:
> Getting ready to head to Omaha for a MUGA Scan, meet with onc, and then back
> to Lincoln for radiation. Still not able to move my left side and having
> difficulty with swallowing.
> Radiation was down for 2 days at the hospital. That was not helpful. Having
> a lot of pain when up in the morning or seated for a long period of time.
> I am staying at Dans house and my mom is here 24/7. Home health is coming in
> too. Amen.
> Thankful for? All the help.
>
> ATTITUDE is everything! *Tracy

Hospital

Monday I went to radiation and ended up in the hospital. I needed an mri of my spine due to weakness and numbness in my hands and leg. I am unable to walk on my own right now. I have some troubling lesions on the spinal cord of my cervical spine, so I started radiation on those as well. I also had nausea, vomiting, and dizziness that has been relieved with an increase in my steroids, and an inability to urinate requiring a catheter. I will be at the hopital until they get a couple more doses of radiation into me, and then maybe an assisted living facility for some rehab before home because I do not have an accessible home. Too many steroids and I might just bust out of here, incredible hulk style!!!
They sent someone in yesterday to talk to me and my family about end of life issues, wills, etc. That was hard on all.
We reestablished that I am NOT giving up yet. I am tired, yes, but I just need a little rest before I kick back in.
I acknowledged that, yes, I will die from this, bit I am going yo die fighting. This is not the time to go home and go quietly.
What am I thankful for? My great support group.

ATTITUDE is everything!  *Tracy

Scan results...

...I told the boys tonight, so I feel better about posting this now-

I would have to say that the scan results were like a kick in the diaphram. I lost my breath a little, okay a lot. The scans showed that I have several new bone lesions (spine, ribs, scapula, humerous, skull...) and now have not the 10, but now approx. 20 liver lesions. BAD NEWS! The doc suggested a MUGA scan to test my heart functioning before starting a new chemo. He has one in mind, but is also going to look into clinical trials. I also told him about the headache that never goes away and the left hand tremor, thinking a brain mri might be good too, so I had that done on tuesday. The results came on wednesday, and I have several brain lesions scattered throughout...the worst news to-date, and I have to admit that as soon as I got off the phone with the doctor I called Dan who had to keep me from hyperventilating. My parents both came to stay with me that evening...we did dinner and a movie, and mom spent the night. I will meet with the radiation oncologist tomorrow morning and we will hopefully get started ASAP on WBR (whole brain radiation). After that is finished, then we can begin chemo ...again.

The boys took the news like troopers. There were some tears shead, of course, but I stayed strong and hopefully that gives them hope that we can fight this longer. I told them that I am tough and will do everything I can to win this battle.

Thankful for?!?! I am thankful for all the prayers that are going up by so many people. I am thankful for the people in our lives that will help the kids, Dan, my sister and parents, and I through this difficult time. I am thankful for Gods love, and I will be thankful for that miracle when he sendings it. =) PLEASE HUG YOUR FAMILY!!! Hope and Love!

United...

The boys are in my room playing football with my prosthesis...first time they have gotten along all day. Ugh. They are cracking up! Ummm...sooo not okay!
But, thankful that they are getting along!

Chemo #10

We did not do chemo #10 today because my blood counts were too low, however, due to an increase in symptoms over the last few weeks we aren't going to wait any longer for scans. I will do them Monday morning (CT's of my chest, abdomen, and pelvis, and a bone scan). I will get the results at my Monday afternoon appointment. No waiting this time!

Thankful for?! People who give blood. Today my mom gave blood in support of Steve McGargill.

Guess the boys were good...

...Santa was at our house!

Tomorrow we celebrate Christmas...

...and I have been on the couch all day with a headache and throwing up tonight. Let's hope I get it all out of my system tonight, because I have lots of presents for the boys to open tomorrow...Andrew church, and family...please chemo, don't mess this up!
Thankful for!? Rest. Very glad I could rest today so that I can enjoy the holidays with my boys tomorrow. Fingers crossed!

ATTITUDE is everything!  *Tracy

Oral Surgeon

Good thing I don't have a fear of the the dentist or I might not have been too happy with Dr. Glenn for yanking on my jaw bone with a plyers!
The bone isn't ready to come out yet...don't know if that is good or bad, but I go back in a month.
I do, however, like it when he calls me "kiddo", even though he is my age or maybe even younger. =)
Thankful for!? A nice breakfast with the boys since school is out and maybe a little nap later too!

ATTITUDE is everything!  Amp it up! *Tracy

Ok, so I am a little slow. News? Not.

So, as scans come up I start to get scared and not to be less than inspirational, but I start to think about all the things that need to be accomplished before....well, you know, the bucket thing.
Anyway, it always comes back to writing a journal and putting together a photo album so that my boys will know/remember me and then tonight it hit me like a ton of bricks!!! That is what this BLOG is! Wow ...daunting task up-to-date!  As of now they know I type a blog but neither of the boys have tried to locate it. I hope it stays that way. I would prefer them to get it after the bucket kicking (no matter how soon or FAR away that is). I do have some handwritten journals for them also, with little things like 'tell your dad I said he would help pay for a limo for prom', how to treat girls/women, things that make me proud and little things I sang to them as babies, but the journal entries are few and far between.  And the photo album...empty. (sigh) Luckily, I have a lot of pics of us on this blog!
What am I thankful for!? Julie Johnston's advice to start this blog clear back in the spring of 2005! Thank you, Girl! Hugs!

ATTITUDE is everything!  Rock it! *Tracy

Hmmm....I wonder who this is!?

Sent via DROID on Verizon Wireless

Chemo was a go!

Chemo #9 is down and chemo #10 is next week...then scans. Doc wanted to do 12 instead of 10...I gave him 'the look' and he smiled and said 10 was fine for now!
Yay! Knowing what I am dealing with is half the battle, and the last time I knew exactly was 9/27/10! Three months and 10 treatments is long enough to tell if the treatments are working in my 'Im-not-a-doctor-and-I-haven't-even-played-one-on-tv' opinion!

What am I thankful for!? A doc that 'gets me', mom picking my kids up from school and dinner done when I got home (yummy!), and some chat time with the ever so funny 'yellow shirt'! Lol! OH, AND FINISHING MY CHRISTMAS SHOPPING FOR THE SECOND TIME. Being finished isn't very final...most of the time! 

ATTITUDE is everything!  Rock a fabulous one!!! *Tracy

Sleepless in Lincoln

Tonight I can't sleep due to bone pain from the shots I did this weekend to boost my wbc's and due to jaw pain.....this leaves me with lots of time to worry about my friends who are not doing well. My heart just breaks...
What could I possibly be thankful for?! My time with these wonderful boys who are sleeping peacefully next to me, and for all the researchers out there searching for answers!

Night with the Stars!

ATTITUDE is everything!  *Tracy

Magic Moments with the Stars

ATTITUDE is everything!  *Tracy